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Help in keeping indi's legacy alive (mito warrior)

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Indi's legacy needs to live on and remain in people's hearts funding will help make memories for the girls, vienna and olivia and liv I want to thank everybody who donated to help us with this barbaric case on indi being Forced to die :( This funding help towards giving indi the best funeral and getting specialist reports in indis condition from top medical professionals in which the nhs and courts didnt want to know . indi sadly passed away at 01.45am after being forced to a hopsice to remove life support treaments :(
Hi our names are Dean Gregory and Claire Staniforth we are fundraising for our 6 month old daughter Indi who has a Mutation of the Mitochondrial Diease Hydroxyglutaric Aciduria d-2 l-2. She hasn't left hospital since birth. She has had x2 operations a bowel operation in Leicester, and a brain / shunt operation in Birmingham for fluid on the brain She is currently in a Nottingham hopsital. She's battled sepsis ecoli which she caught from the hospital. She was having seziure type eposides from 5weeks old for months some which lasted for 2hours + but then we was told there not seizures. She is the strongest little girl and a real fighter. When she caught sepsis ecoli she really went down hill, having to be intubated and having cardiac arrest 3 times requiring CPR which we have had to fight for as we was constantly being pushed for no DNR many times before this event. But Indi survived it and she didn't only survive it she started to pick up after starting her Ketogenic Diet! She was doing so well that she finally moved on to a ward after 5 months of being in Intensive care. But 2 days of being on the ward she deteriorated which ended up with her going back up to Picu , but after the dr
investigation it turned out she caught another infection from the ward called enterovirus. Indi has made so many gains she communicates with baby noises she moves all her limbs she has the most beautiful blue eyes, very long eyelashes. Even with how Indi is now and all that Indi has been through, we have now been told we are having to go to the courts for them to decide on Indi future care because there is a disagreement between us and the drs. We are doing what's in the best interest of Indi not what's in the best interest of the system. We have HOPE and we are FIGHTING as any other parent would, I am a proud father and I've never asked anyone for help in my life, but all this that is happening to our Brave, beautiful daughter is injustice and this can't/shouldn't be happening to children with disabilities its morally wrong, cruel. So please help us overturn there opinion to just only offer comfort care and letting her potentially pass away because of it. No parent should have the stress because they are fighting for there child and then being told that you will now have to go to court to fight the disagreement. We are fighting not just for Indi but for all other children with mitochondrial diease or any other diease. Im also fighting for Indi sisters Vienna and Olivia all her family who will be left heart broken if this happens. The funds will be going towards Indi's Legal Aid. I can't let them do this to Indi or any other children with disabilities and life limiting dieases


Dean Gregory

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