Cystic Fibrosis Rehab: Just Stream It.

Hello!  I'm a Pediatric Pulmonary Fellow in my 2nd year of training at Miller Children's Hospital.  Which means I'm working to help care of kids with lung problems, a big one of which is known as Cystic Fibrosis.  CF occurs when your chloride channels stop working, and as a result, the mucus that the body normally creates (yes, even as in yours and mine), becomes very thick and results in problems in your pancreas, intestines, and especially in your lungs. 

While there are plenty of medications and medical interventions being researched, there is one method of treatment that has been relatively overlooked which is free, fun, and thankfully not needing insurance reimbursement.  What is this amazing treatment? 

Exercise.

That's it.  Then why raise money if it's free?  Take into consideration that these kids (and their parents) have to do up to 3-4 hours of airway clearance and medications per DAY.  Add to that school and homework and well, exercise isn't much up there on the priority list.

Hence this first-time crowdfunding venture!  Using just a HD webcam, video conferencing, and a few good fitness instructors, we can stream live exercises for 30 minutes/day straight into their homes, without the inconvenience of scheduling or hitting traffic.  Proceeds will go to instructor reimbursement, internet usage, or technical equipment, with every cent directly going towards this project to benefit our pediatric CF patients at the Miller Children's Hospital Cystic Fibrosis center.

Usually, I'd look for grants, but let's be honest - those usually go to scientists much smarter than me and who are the masters of pipetting.  So us smaller-brained folk need funding to start this 3-month pilot project in order to see how much of an impact we can make on our CF kids lungs and overall quality of life.  If we are successful in showing a difference, you would be helping us to pave the way for future research and of course, making a difference in our CF kids now.  Thanks for your help and for spreading the word! Now go exercise!

  • S. Williams 
    • $25 
    • 100 mos
  • Anonymous 
    • $200 
    • 100 mos
  • Anonymous 
    • $200 
    • 101 mos
  • Leila Yoonessi 
    • $100 
    • 101 mos
  • Anonymous 
    • $100 
    • 101 mos
See all

Organizer

Jen Jen Chen 
Organizer
Long Beach, CA
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