#JohnsJourneyTRANSPLANTHELP

JOHNS ESTIMATED COST FOR TRANSPLANT:
The estimated cost for John is $2,000,000. This is for doctors appointments, testing, blood transfusions, chemo and radiation, transplant, required medication and only if everything goes smoothly and no complications.

John will be unable to work and also is required to have a caregiver with him, that will also be unable to work.

The estimated cost above doesn’t include required minimum stay at hotel/motel, our insurance payments, house payments, car insurance payments, required parking for treatments, power, water, sewer, taxes, etc.

Due to all the unexpected financial crisis, John and I are trying to liquidate any and all tangible assets that we have (which includes our home). We have already had such high cost with all that has been done so far. Johns co-pay typically are $55.00 (he goes every week and sometimes he has 5 or more in 1 week) every time he goes to any doctors appointments and a lot higher for hospital visits and testing that is required.

We have checked into any Financial help that’s offered (which is very little and limited).

SO, PLEASE IF YOU, A BUSINESS OR ANYONE ELSE THAT CAN HELP, SO JOHN BUCKLEY, AKA: BUCKWHEAT LIVE!!!!

AT THE RATE THAT THE DISEASE HAS PROGRESSED AND THE NEED FOR IRON REMOVAL MEDICATION, HIS LIFE EXPECTANCY ITS LONG!!!

ABOUT MYELODYSPLASTIC SYNDROME (MDS):

MYELODYSPLASIA SYNDROME (MDS):
The symptoms and course of MDS may vary greatly from person to person and also depend on which blood cells are affected. Most experts agree that MDS is a cancer of the blood and bone marrow.

BONE MARROW TRANSPLANT:
A bone marrow transplant (BMT) is also called a stem cell transplant (SCT) or hematopoietic stem cell transplant (HSCT). The procedure replaces unhealthy blood-forming stem cells with healthy ones and offers some patients the possibility of a cure. But for many patients, a BMT is not an option due to the risks and potential long-term side effects as an "imperfect cure".

TRANSPLANT:
The transplant will be performed on an outpatient basis if approved by the insurance payer. If medically necessary, the patient will be admitted and will remain in the hospital during the course of the transplant and recovery.

REQUIRED LODGING:
Allogeneic transplant patients need to remain local for 100 days post-transplant. Patients will be referred to a local hotel for lodging.

DURNING THE PROCEDURE:
The time of the transplant procedure will vary from one to three hours, (or longer) depending on the type of blood and marrow transplant.

Blood and marrow transplant patients should expect to stay in the hospital for 3 to 4 weeks for an allogeneic transplant.

Patients will need to secure local housing for approximately 100 days for allogeneic transplant.

Post-transplant treatments can last from a week to several months.

Caregivers MUST be present around the clock following the patient’s discharge from the hospital. For an allogeneic transplant patient, a caregiver is required for 100 days post-transplant. Patient’s may rotate caregivers; however, each caregiver is required to be present for a minimum of a week at a time when not admitted to the hospital during the transplant phase to ensure consistency of care.

Following the return home, patients increase the chances of their transplant being successful by:
Taking new medications daily.
Washing hands frequently.
Avoiding sick people.
Avoiding gardening.
Dedicated caregivers.
Avoiding large crowds while taking immunosuppressive medication.

HOW IT ALL STARTED:

THE BEGINNING:
John started feeling very tired and short of breath earlier in the year. After a routine CBC in July, he was called to go to the ER as his hemoglobin was dangerously low. A few weeks later he had a heart cath. Doctors didnʼt find anything and referred him to South Carolina Oncology Associates (SCOA).
SCOA started doing weekly blood work to monitor levels and attempt to determine the cause of anemia. Each week we were met with the same answer “We donʼt know”. To date, he has had 2 different bone marrow biopsies. His hemoglobin has dropped to a low of 5.3 (typically a male is 16.0 or higher) to a high of 8.6 and he has received 10 blood transfusions (19 units of blood) so far. He goes to the doctor every week to have his hemoglobin checked to see if he needs another blood transfusion. Currently, he is transfusion dependent and receives a transfusions (a minimum of 2 units of blood) about every 5 to 9 days. The multiple transfusions have caused iron buildup in his body and is now on a iron buildup removal medication ($3,340 for a 30 day supply).

As of Tuesday, 11/07/2017, he was diagnosed with MDS. Myelodysplastic syndromes (MDS) are conditions that can occur when the blood-forming cells in the bone marrow are damaged. This damage leads to low numbers of one or more type of blood cells. MDS is considered a rare type of blood cancer.

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  • Carol Ragland 
    • $25 
    • 25 mos
  • Kellie Ballentine 
    • $100 
    • 26 mos
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    • $200 
    • 27 mos
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    • $1,000 
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John Buckley 
Organizer
Lugoff, SC
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