
Living thru Fibromyaglia/Migraines
Donation protected
Those who know me personally: I hope you remember me with carefree days, all the lacrosse and field hockey I could play, being the life of the party, earning two B.As, a Masters in Forensic Psychology and receiving my LPC. Well those days are unfortunately long gone.
I now have the opportunity to receive in-patient care thru the Michigan Headpain and Neurological Institute (MHNI.com) in my hometown in Michigan (actually went thru their OP Migraine program in middle and high school, last in 1998) where I would be admitted to a local Hospital to medically detox off all my Rx as they are ultimately are interacting negatively. I'm having adverse reactions and been directed to take more Rx for those symptoms. I have to be IP to go off the Rx due to the risk of complications including seizures. Well the program will work to get my headaches, migraines, fibromyalgia and sleep problems under control while also working with a pain psychologist beside a huge network of specialists at once. The problem is I don't have out-of-network coverage with my employer's Cigna Health plan and MHNI doesn't even take Cigna. The hospital is in-network, however since the admitting Dr. would be out of network it most likely won't be paid for either. I can have labs, EKGs/EEGs/MRIs etc at a place that accepts Cigna while there. But the hospital fees and Professional fees of MHNI wouldn't be covered. I've been working with MHNI, The Hospital, my Insurance, my company's health insurance broker and my HR for the last 3 weeks and going home and crying myself to sleep. I have the intake evaluation in MI currently scheduled for July 7th. I haven't bought a plane tix yet. I have to have approximately $1,300 up front and once they get confirmation insurance won't pay, they need a $5,000 deposit for MHNI and $10,000 deposit for the hospital. The program is on average 7-14 days with 10-13 patients from all over the US. I have been informed worst case scenario self-pay will be between $35K-50K and would need to be paid over 3 months. I have listened to every Doctor and have gone to every western, eastern, holistic provider (Neurologist, Rheumatologist, Pain Specialist, Internal Medicine, etc specialist). I have utilized Rx, OTC, supplements, massage, chiropractic, acupuncture, dry needling, Iron and Myer's Cocktail IVs, daily B12 shots, diet changes, exercise, PT, behavioral therapy, Biofeedback, yoga, meditation, Botox, DHE, trigger point injections, cupping, heat, cold, rest, and a million other things -- you name it I've tried it. I am barely holding on right now. This the worst my migraines which I've had for 28 years (daily headaches too) and fibromyalgia which I've had for 15 years have ever been. There are 6 other IP headache/migraine programs in the US, however they don't help to address chronic pain/fibromyalgia or sleep disorders (and there's no guarentee my insurance would be accepted either). I need to do this. I can barely work, my Docs already want me on Disability. I have loss friends who don't understand these "invisible illnesses" or who don't understand why I have to cancel plans, I am stigmatized at work, troubles in my relationship and so forth. It hurts to put clothes on in the morning. More days than not I can hardly walk, and the flare-ups keep me bed-ridden. Then on top, the emotional/mental pain -- stress, anxiety and depression are made worse making the physical problems even more horrible and the vicious cycle continues. I hate to even think about borrowing or asking for money. I'm the one usually donating to animal causes or suicide prevention. However at this point I have no otheralternative. This may be my last chance to receive help and hopefully live a happy life once again.

I need to get better for these precious furbabies.
I now have the opportunity to receive in-patient care thru the Michigan Headpain and Neurological Institute (MHNI.com) in my hometown in Michigan (actually went thru their OP Migraine program in middle and high school, last in 1998) where I would be admitted to a local Hospital to medically detox off all my Rx as they are ultimately are interacting negatively. I'm having adverse reactions and been directed to take more Rx for those symptoms. I have to be IP to go off the Rx due to the risk of complications including seizures. Well the program will work to get my headaches, migraines, fibromyalgia and sleep problems under control while also working with a pain psychologist beside a huge network of specialists at once. The problem is I don't have out-of-network coverage with my employer's Cigna Health plan and MHNI doesn't even take Cigna. The hospital is in-network, however since the admitting Dr. would be out of network it most likely won't be paid for either. I can have labs, EKGs/EEGs/MRIs etc at a place that accepts Cigna while there. But the hospital fees and Professional fees of MHNI wouldn't be covered. I've been working with MHNI, The Hospital, my Insurance, my company's health insurance broker and my HR for the last 3 weeks and going home and crying myself to sleep. I have the intake evaluation in MI currently scheduled for July 7th. I haven't bought a plane tix yet. I have to have approximately $1,300 up front and once they get confirmation insurance won't pay, they need a $5,000 deposit for MHNI and $10,000 deposit for the hospital. The program is on average 7-14 days with 10-13 patients from all over the US. I have been informed worst case scenario self-pay will be between $35K-50K and would need to be paid over 3 months. I have listened to every Doctor and have gone to every western, eastern, holistic provider (Neurologist, Rheumatologist, Pain Specialist, Internal Medicine, etc specialist). I have utilized Rx, OTC, supplements, massage, chiropractic, acupuncture, dry needling, Iron and Myer's Cocktail IVs, daily B12 shots, diet changes, exercise, PT, behavioral therapy, Biofeedback, yoga, meditation, Botox, DHE, trigger point injections, cupping, heat, cold, rest, and a million other things -- you name it I've tried it. I am barely holding on right now. This the worst my migraines which I've had for 28 years (daily headaches too) and fibromyalgia which I've had for 15 years have ever been. There are 6 other IP headache/migraine programs in the US, however they don't help to address chronic pain/fibromyalgia or sleep disorders (and there's no guarentee my insurance would be accepted either). I need to do this. I can barely work, my Docs already want me on Disability. I have loss friends who don't understand these "invisible illnesses" or who don't understand why I have to cancel plans, I am stigmatized at work, troubles in my relationship and so forth. It hurts to put clothes on in the morning. More days than not I can hardly walk, and the flare-ups keep me bed-ridden. Then on top, the emotional/mental pain -- stress, anxiety and depression are made worse making the physical problems even more horrible and the vicious cycle continues. I hate to even think about borrowing or asking for money. I'm the one usually donating to animal causes or suicide prevention. However at this point I have no otheralternative. This may be my last chance to receive help and hopefully live a happy life once again.

I need to get better for these precious furbabies.
Organizer
Jill Ferretti Rosenspire
Organizer
Aurora, CO