Seeking assistance with Rare Autoimmune Disease

Hello. My name is Jason; I recently turned 50 and have just been diagnosed with Mucous Membrane Pemphigoid with Ocular Cicatricial Pemphigoid.

In a nutshell, my Immune system is attacking my mucous membranes. I get painful blisters and open lesions in my mouth, my nasal cavity, my throat, my scalp and scar tissue that is slowly covering my eyes and will eventually blind me if I can't get help.

It is an incurable ultra-rare autoimmune disease. So rare, in fact; that many doctors and specialists have never heard of it. I need to see a group of different specialists, including: Ophthalmologists, ENTs, Dermatologists, Rheumatologists and PHCG.

I've been prescribed a high daily dose of Steroids which is wreaking havoc on my body with harsh side effects, and I'm also a Type 2 diabetic with Major Depressive Disorder.

I'm on disability, but that only provides me with a little over 1300 CAD a month.. after rent, I can barely pay my bills and often can't afford any groceries.

I had to leave my part-time job as my eyesight was deteriorating, and I felt fatigued and nauseous all the time.

Of course, the stress, anxiety, depression and overwhelming pain and discomfort make living day to day very difficult at the moment.

I'm asking for assistance as I find myself at a point where I'm having a difficult time being self-sufficient.

The hardest thing, of course, is coming on here and asking for help. I'm just losing my sight so quickly, and I'm terrified. So please help if you can. Thanks for your time.

The donations I receive here will go to:

Medications not covered by disability

Saving for a new used car.

Gas money to get to Doctor's Appointments (over 200km away)

Healthy Food and Groceries (as we know, unhealthy food is the cheapest, sadly)

Getting up to date on current utility bills

Seeking out Pain Relief

For more information about this disease, please visit: International Pemphigoid & Pemphigus Foundation /

*The picture is of my left eye. The fleshy attachment is called a symblepharon. It attaches the inner eyelid to the eyeball and restricts movement. It will eventually spread to cover the whole eye and render me blind.