Jada is my 4yr old daughter that had been diagnosed with Chiari Malformation I and she also has a tethered spinal cord. We have been undergoing many tests; MRI's, CT scans and numerous blood tests. We have one more MRI to do and then its on to pre-op and then surgery. The appointments and surgery are all being done up at OHSU (amazing facility i must say). Its been tough to juggle work, school and long trips up to Portland but we are making it all work so far.