Jack Stone Strong

Hi everyone my name is Justine Camacho I’ve set up this GoFundMe on behalf of the McIntosh Family…

As many of you know Jack Stone McIntosh went home to be with the Lord on Thursday Aug 24th. Jack had been stronger and fought harder in his 6 years of life than most of us will ever have to. After being diagnosed with an ultra rare genetic mutation Jack was given a two year life expectancy, against all odds he showed us all to have a little more faith, a lot more heart and to be strong! Jack’s fight is not over  

KCNT1 epilepsy is an ultra rare infant-onset seizure condition caused by gene mutations in the KCNT1 gene. As KCNT1 epilepsy is so rare, when Jack was born there were only a little over 100 documented cases worldwide and there is less than one in 2 million chance of being diagnosed. 

His parents Preston and Jen wish to create a legacy in Jack’s honor. Supporting KCNT1 epilepsy and other families of specific needs is the long term goal of this legacy. Jack touched the lives of everyone he came into contact with and was blessed by those who became part of #JacksArmy. Always being passionate about their community, other special needs families and those affected by conditions without a cure The McIntosh Family is committed to giving back . It’s our hope to bring awareness to KCNT1 Epilepsy so that we can find a CURE! We know this is not the end of Jack’s Legacy and plan to continue to raise awareness. 

We have started this GoFundMe to help the family with expenses, his recent hospitalizations this summer and the cost associated with his passing and memorial. Additional funds will go towards helping continue his fight through helping others in need and starting efforts for his legacy Separate donations in Jack’s honor can be made to dedicate room 458 at USA Children’s and Women’s (Mobile,AL) in Jack’s name and the KCNT1 Epilepsy Foundation  

#JackStoneStrong #JacksArmy #KCNT1Epilepsy #hopeisonthehorizon