In loving memory of our Angel, Xavier

Ariana Avdoulos is organizing this fundraiser on behalf of Silena Alvarez.

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It is with heaviest hearts that we have to say goodbye to our sweet Xavier so he can now be with the angels. Heartbreakingly, Xavier was only 2 years old. Our family is utterly shattered and heartbroken. Xavier passed away in his mother's arms April 26th, 2022. He fought a long and hard battle with a very rare gentic disorder called X-Linked Myotubular Myopathy, 1 in 50,000 newborn males worldwide are affected. In Xavier's case he spent 8months of his life at Childrens London Hospital. Xavier had severe muscle weekness, diminished muscle tone (hypotonia or " floppiness"), feeding difficulties, and breathing complications (respiratory distress). After everything our sweet angel has conquered, the little warrior came out smiling. He was always a happy little boy with the most infectious smile.
All proceeds of this gofundme will go towards Xavier's mom to cover funeral expenses and towards X-Linked Myotubular Myopathy research, so kids like Xavier can live a longer life.

Xavier's mom Silena, a single mom has spent every hour caring for him; she hasn’t been working due to all her son's needs.
Xavier's smile will be forever engraved in our memories. The sun will stop burning one day, but our love for him will never extinguish. He will be missed dearly, especially from mom Silena, his grand parents, aunt and uncle and all his cousins.