Mum passed away in Dec 2016 due to a condition called Idiopathic Pulmonary Fibrosis (IPF). I, with my siblings, cared for her as she gradually became more affected over time since her diagnosis.
She was an active, outgoing lady who loved everything from traveling abroad and hiking in the Mournes to learning at Queens University. She loved act and dance, especially jiving with our daddy, Pat.
IPF is rare, terminal and does not have a known cure. Little is known about its cause. Affected individuals have a life expectancy on average of 3-5years from diagnosis. More research is needed to find a cure. More services and medical understanding is needed to support people living with IPF.
Our mum was diagnosed and cared for in Belfast, Northern Ireland where apparently we have one of the highest numbers of people diagnosed with IPF.
Recently, Belfast City Hospital appointed its first IPF specialist consultant.
We aim to raise funds to facilitate a support group for individuals living with IPF in Northern Ireland. Any excess funds will be given towards raising awareness, supporting improvements in service provision and research.
My initial plan to boost fundraising is to commit to running ten 10ks over 2018. My family circle is also going to work to help achieve this target.
This gofundme page will be open for the duration of 1 year, beginning today, December 19th 2017, our mums 1st anniversary.
Please help. Thank you x
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