Krabbe leukodystrophy is a degenerative disorder that affects the nervous system. It is caused by the shortage (deficiency) of an enzyme called galactosyleramidase (GALC). This enzyme deficiency results in defective myelin, the covering that insulates many nerves. Krabbe disease is considered part of a group of disorders known as leukodystrophies, which result from the imperfect growth and development of myelin. Krabbe disease usually begins before the age of 1 (early-onset form). Initial signs and symptoms often include feeding difficulties, episodes of unexplained fever, stiff posture, and developmental delay. As the disease progresses, muscles continue to weaken, affecting the infant’s ability to move, chew, swallow, and breathe. Affected infants also experience vision loss and intellectual disability. Krabbe disease is caused by mutations in the GALC gene and is inherited by being passed down through families.
As Caoilainn’s Auntie and Fairy Godmother (as her mother, my best friend, named me), I have begun this donation page for the soul purpose to help Caoilainn and her family cope and deliver possibilities for the life she does have, here on earth with all who love her. All donations will be used for a variety of things, including: Any medical expenses that may surface during the care of Caoilainn. Any living expenses to make the stresses of finances lessen while mommy and daddy are home caring for their daughter.
We are praying for a miracle. Please lend a hand in prayer, positive vibes, whatever it is you believe in for Miss Caoilainn Nicole O’Donnell. She is the light of many lives. Thank you.
To help spread awareness of Krabbe Disease, for every $25 donation or more, we will be be mailing out car decals like the one below. Please email your address to receive your decal:
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