
Ledderhose disease fighting for all of my life
Donation protected
Hi everyone
The last 4 years of my life has been hard.
I had have 2 surgeries under my left foot in that short time. 23 years ago i had surgery under both my feet..
The doctors thought that i had sarcoma tumors. But no. Radboud hospital doctors told me last week that for all this years i have the ledderhose disease. But because its only thought by old People or man mostly. 23 years ago they did not think it with a girl of 12 years old.
So every surgery has now make it worse. The ledderhose is big on te side of my foot growing.
I will now get the care thar i need and what is needed is radiation therapy for a periode of 2 times 5 days of the week everyday a radiation therapy.
The problem is i need to let to do it by doctors all the way in UMCG because im sadly the only one at the age of 35 that the previous doctors and hospital made so many mistakes and did surgerys and made it so much worse than wat normal is for the ledderhose disease that the team in UMCG that did studies for this disease need to take a look and do the radiation therapy because my left foot had to much surgerys and its now not functional anymore for the day to day normal activities like walking. Doing house choirs. Standing. Because its to hurtfull and i stand directly on bone on some points because the surgerys took to much
Why i made this go fund me because i have many cost like wheelchair. More disabled stuff i Just need to do my normal. No let me correct that. Everyones normal day to day routine like shower, cooking, grocery shopping, go simply to the toilet from the couch. And my medication for the pain and nausea im in everyday.
And after all that i need to stay 2 times for atleast both times 5 days in hospital for the radiation therapy that its Just to much cost to care alone and i need help.
So thats why i made this gofundme because of everything i need help. Everybody needs help sometime in their life and it is sadly that i need it now.
Every little bit helps.
Thankyou from a young woman with the ledderhose disease
Co-organisers (2)
Kay Bosland
Organiser
Patrick Winter
Co-organiser