Joni May is my wife, also a mother, a daughter, a sister, an aunt and great friend. After becoming mysteriously ill in March of 2016 and traveling the East Coast in search of a cause for her illness, she was finally diagnosed with Lyme Disease.
Joni was a vibrant extroverted woman, making friends where ever she went in the world. In the summer months she bicycled miles and miles every week. When she wasn’t biking, she played tennis as well as organized leagues in her community. We took many hikes in the beautiful Adirondacks located near our home.
Attending Liverpool High School, she played soccer and ran for the sheer joy of it. She played soccer as an adult and later coached children in a community soccer league.
Her professional career as a self employed social worker, she delighted in seeing the progress her clients made in their journey through personal and family strife. She has an intuitive knack for knowing what to say and when to say it. Many of her clients spoke to me, letting me know what I had already known, that she is a wonderful woman and a compassionate human being.
We have two sons and two grandchildren that have been robbed of her presence in the last two years. Missing significant births, birthdays, Thanksgivings, Christmas’s as well as just the everyday joys she should be enjoying with her family.
Today, Joni struggles to get out of bed, eat a bit then go the clinic three times a week. The treatments last most of the day and drain what little energy she has. This once vibrant woman spends her free time sleeping, putting jigsaw puzzles together and staring out of the window. She has no energy, no zest, and no vitality. She looks in the mirror at a shadow of what she was and spends many hours in tears at what her life has become.
As her fellow Lyme sufferers will attest, there is no recognized treatment for Lyme and there are many doctors, clinics and supplement hawkers our there that are more than happy to offer little more than snake oil at exorbitant prices as cures for Lyme.http://www.ilads.org/lyme/about-lyme.php
We believe that we have found a clinic that may help her get better if not cured. Unfortunately, the location of the clinic is in Florida and we live in New York State. There is the cost of treatment, the housing in Florida, supplements, groceries, medicines, consultants, dentist visits for root canals, everything at crazy expensive prices. We are spending our life savings in the hope that Joni gets the proper treatment she needs to get cured. We are fast reaching the bottom of our resources with many months of treatment ahead of us.
We are asking for your help in getting her to the end by helping us raise $30,000
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