Baby Lilliana will be 1 years old next month. Lilliana was diagnosed with neuroblastoma January of this year, neuroblastoma is a rare cancer often found in the small glands on top of the kidneys (adrenal glands). It can develop in the belly, chest, neck, pelvis, and bones. Children ages five or younger are most commonly affected. Lilliana became sick with RSV (Respiratory Syncytial Virus), which is a common, and very contagious, virus that infects the respiratory tract of most children before their second birthday or in Lilliana's case before her first... Unfortunately, but thankfully, because she got this virus they noticed what they suspected to be a tumor. Months have gone by and it continued to grow. It was then up to the doctors to make a treatment plan, which intended to be surgery. Lilliana then had a cold, which prolonged the process. Alexx had to keep her isolated from everyone and everything, including her older brother, because of him constantly being sick due to the weather and/or allergies. So for the past couple of months Lilliana has had to be Quarantined to one room. Anyone who had to go near her, had to have a mask on and remain sanitary. Lilliana's favorite toys are her baby dolls and her musical robot, she is one of the most happiest babies you'll ever lay eyes on, despite what she is going through. Her smile is contagious and she can make anyone laugh. When she knows she is not supposed to being doing something, like most babies, she waits for someone to see her and then races away before getting to her. She is just overall funny, so beautiful, and could brighten anyone's day.
The family has been trying to manage their everyday life, house hold bills, which now included paying for hospital bills, as well as dealing with shortened paychecks. Both Alexx and her husband Kyle, have had to take quite some time off from work, luckily able to take leaves, but at this point without pay. Early diagnosis and having to keep her away from anything or anyone so she won't get sick they ran out of sick and personal time they had available. They had money saved up, but things came up and they had to pay for vehicles, son's school supplies, as well as many co-pays. Her brother Landon, who is 6 years old, has his doctor appointments as well, for his ADHD and for his hearing problems or medicinal needs. Kyle has been out of work for two months and Alexx will now be off for the next month in order to take Lilliana for check ups, to be sure the cancer does not come back
Lilliana had surgery April 3rd to get her tumor removed, there was a 60% chance she would get Horner Syndrome. Horner syndrome is a combination of signs and symptoms caused by the disruption of a nerve pathway from the brain to the face and eye on one side of the body. Unfortunately they hit a nerve and now baby Lilliana has Horner Syndrome which cannot be cured.. Consequently, Alexx had to relocate because of financial struggles. Alexx has one of the biggest hearts and would do anything for anyone, but she refuses to ask for help. All we ask is for some donations, whatever helps, to help this family through their difficult time. It would be such a relief for them to know that their struggles can in some way take a little stress away from their situation. It would be greatly appreciated and we personally thank anyone and everyone who is willing to donate or just share with your family and friends.
- Amelia Bernat
- Jacob Campbell
- Jen Robertson
- Holly Verrier
- SFL Companies
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