Please help me because I am rapidly deteriorating and will die if I don't get the lifesaving medical treatment that I desperately need. I know it sounds insane to be afflicted with as many illnesses/problems as I have, but please hear my plea for help because we can no longer afford my medical treatment and I am too young to die. The doctors can't even believe that I am still alive despite all that I am afflicted with, but I am a FIGHTER and I want to beat this illness so that I can become a doctor a make a difference the lives of others.
I suffer from extremely rare, debilitating, painful, life threatening illnesses known as Gastroparesis, Short Bowel Syndrome, Intestinal Pseudo-Obstruction, Dysautonomia, Reflex Sympathetic Dystrophy, and a Pituitary Brain tumor. Unfortunately, due to the complexity of my illness, we have to seek the help of top specialists across the country (i.e. Cleveland Clinic, California, Nebraska, etc.) because not many doctors are familiar and knowledgeable about my condition. Medical treatment for my illness is extremely expensive because I need multiple surgeries/procedures, medications, and traveling expenses to see specialists.
I am in desperate need of going to California to seek the knowledge of specialists and to have multiple surgeries. My entire GI tract has completely failed me, and I am unable to eat. My weight has plummeted to only weighing in the 60+ range, and I spend every week going to the hospital to have my colon cleaned out so that I don’t go toxic. I need to go to Nebraska to have tubes placed in my jugular vein to try to feed me as well as to remove colon, which will later culminate in a multivisceral organ transplant that only 8 hospitals perform (stomach, small and large intestines, pancreas, and liver) when I am more stable. However, unless we receive donations, we will not be able to go because we can't afford it on our own.
Just to keep me going, I need to take constant medication, which is over 50 pills daily and I even take multiple injections. These include Morphine, Dilaudid, Nucynta, Ketamine to just name a few. I am even on Medical Marijuana. I even go 3 times a week into the hospital and OR to get my intestines/colon emptied because my body will go toxic and septic if I don't, as well as to get ketamine infusions, blocks, etc. because the pain from these illnesses and in order to control the dysautonomia is too great. The medical bills are way too great and donations are much needed to help pay for these costs just keep me functioning and alive day-to-day.
Once an "A " student who loved school, was involved in many extracurricular activities, was a competitive figure skater and violinist, enjoyed spending time with family and friends, I have spent the last couple of years incapacitated, paralyzed, unable to go out of my house to socialize or work, and unable to sit, walk, shower or even eat. I was an active, healthy teenager, until, without any warning, my life as I knew it was ripped away from me by these extremely rare, painful, and crippling illnesses that will kill me if I don't get help quickly. I am a timebomb just ticking away and I really hope to be able to be helped before I explode. There are so many times that we don't even know if I will make it through a day or night!
I now am crippled by severe illnesses including dysautonomia and Reflex Sympathetic Dystrophy is a rare, disabling pain disorder in which ordinary sensations such as touch, warmth, and even coolness are perceived as painful. I suffer daily (24/7) from sharp, stabbing, tingling and burning pain; severe headaches; paralysis; intense muscle spasms; dystonia; sensitivity to any touch (allodynia); extreme sensitivity to lights and sounds; inability to sweat; swelling; deterioration of bones; decreased hair growth; discoloration of the limbs; and painful skin ulcers. Due to how hypersensitive I am, my parents at times can't even kiss me, I can't wear a sock, I can't sleep with a blanket. It ranks higher on the pain scale than Cancer, childbirth, amputation of a digit, etc.
My life has really been turned upside down. I am forced to live a life within the 4 walls of my home because I am too ill to go out, my social life is nonexistent, the only thing FUN and I have in common is the "first" letter, and I can't even become the doctor that I always dreamed to be.
I am deteriorating so rapidly and time is not on my side. Yet, unfortunately, my illness poses a real financial burden on me and my family and we can no longer pay for my medical expenses without the help of others. I desperately need your HELP in order to receive the lifesaving treatment to overcome this illness. We have a growing stack of bills from very costly insurance premiums, co-pays, procedures, doctors, and traveling expenses. My parents try as much as possible to make ends meet, but they have had to take an indefinite leave of absences from their careers in order to provide the vital at-home care needed to help me get me through this ordeal, as well as to take me to the doctors and to get treatments.
Doctors do not know how I am currently living with all that is happening to me, but I am still pushing on and hoping for a day that I am 'cured' and able to live my life to the fullest! I love life and I have so much to offer the world! I want to get better so I can become that doctor I always dreamed of being so I can help others in need.
In short, I desperately need your help to get the lifesaving treatment I desperately need. We have exhausted all methods of receiving help and trying to get me the medical treatment that I require. Setting up this account was very difficult because we were always a family that “gave” and never had to ask for help. However, unfortunately, we have gotten in over our head in medical expenses and in desperate need of financial help to pay for my medical expenses. It is hard to ask for help…. As we start this new year- we are in debt over 100,000. We are even having difficulty paying for our health insurance on a monthly basis and it would be a disaster to have to go without it.
I am very humbly asking for financial help, no matter what size the donation, because I wont be able to get the lifesaving treatment that I need without your help. Even if you are unable to donate, please pass on this site, send a few prayers our way, and if you could read my story through my blogs. Thank you for taking the time to read this. I am praying that my life will only get better so I can live a long and happy one. To better understand what I am going through, please watch the movie “Miracles from Heaven.” It is so close to my story.
Thank you for all your help and support. All donations are appreciative. Please help me because even $1 is one less than I have to worry about.
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