We are reaching out to ask for your prayers and financial support for our beautiful daughter, Kiley.

For more than 10 years, Kiley has lived with complex, debilitating health challenges. Her condition has rapidly declined over the last year—and we are now facing urgent medical and travel expenses for care that might be life-saving.

A Life Transformed By Chronic Illness

Kiley has always been a bright light – athletic, joyful, kind-hearted, and determined. She grew up dancing, snowboarding, hiking, surfing, cheerleading, and playing tennis. But at age 12, her health began to drastically change.

Kiley began experiencing Severe symptoms in 2016:

Some days, walking just a few steps to the bathroom as exhausting. She showers sitting on a chair, with her chest carefully sealed with AquaGuard to protect her central line. Her left arm has limited mobility due to repeated vein access.

Interrupted Dreams, Unshaken Determination

Kiley started her sophomore year of high school full of Hope – but she was only able to attend two weeks before her help forced her to transition to online learning. Even then, she showed incredible resilience and graduated a year early in 2020 through Utah online school.

Despite her illness, she’s stayed creative and driven – finding joy and photography working under the name @juneypnotos. It’s one of the few things that still brings her light during such a dark time.

The Medical Battle: Procedures, Travel and Pain

Kiley has been seen countless specialist, undergone MRI’s, CT scans, GI studies, nerve blocks, surgeries and been prescribed dozens of medications and supplements. After years of painful testing and desperate searching, she received diagnoses including:

Kiley’s Medical Journey: A Daily Fight for Survival

Until recently, Kiley was on Home Health for weekly central line dressing changes. But in May, her usable veins were exhausted. Since then, she has had to travel to the hospital once a week just to have her central line dressing changed – a crucial step to prevent infection.

Every day, three times a day, Kiley connects herself to IV bags filled with hydration and vitamins. What started as twice-weekly

necessity has become a daily lifeline.

Because she cannot eat or drink, drink without immediate nausea and intense pain, Kiley receives all of her nutrients and calories through a picc-line and nj tube.

In August 2021, Kiley underwent MALS surgery. Her case was rated with 9/10 in severity, but sadly , the surgery didn’t relieve the pain or nausea. That fall we made three weekly trips up north for follow-up care: first to see a GI Specialist then for an endoscopy, and finally to check her picc-line placement.

After calling the hospital where her picc-line had been placed— concerned about her shortness of breath, chest pain, and crackly in her chest— We were told there was no need to worry. But something didn’t sit right. We called hospital up north, explained the symptoms, and we’re urged to bring her in immediately.

A scan revealed that the line has been placed 5 cm too long, sitting in the wrong area of the heart that very morning – December 10, 2021 – we drove through a dangerous snowstorm from Salt Lake to Provo the 45 minute drive became 90 minutes of white knuckle travel car slid off the freeway around us. doctors place the line with the tunnel central line and secured it with sutures to keep us safe.

In March 2022, Kiley Underwent another procedure – Venogram and renal block – to check for Nutcracker syndrome around that time, she also had a nasal feeding tube place to bypass her stomach entirely, delivering nutrition straight to her jejunum (nj). She carried two backpacks daily to hold her medical equipment, and overtime, gained and maintained 10 vital pounds. That tube provides the calories, hydration, medication, and nutrients that are literally keeping her alive.

She still cannot eat or drink anything by mouth the nausea and pain or constant – 24/7.

Kiley’s Strength and Spirit

To know Kiley is to know a true fighter. She smiles through the tears, carries grace through the pain, and never stops believing. Every year, she’s asked, “Can I really get any sicker?”- and heartbreakingly, the answer has often been yes. But she still keeps going. Though she’s been sick for over 10 years, this past year has been her hardest – physically, mentally, and emotionally.

She is light, kindness and grit, all rolled into one – and she deserves a long, happy, healthy life. Please continue to pray for the healing of our sweet girl, and if you feel lead consider donating or sharing her story this into the full campaign story, we this into the campaign story.

Unfortunately, despite aggressive treatments, Kiley’s health continues to decline. We are now pursuing a specialized out of state surgical procedure that offers hope.

Who Kiley Is

To know Kiley is to love her. She’s kind, compassionate and resilient-even when her body feels broken. Before she got sick, Kiley was change the sentence full of energy. She loves snowboarding, surfing, dancing, cheerleading, hiking, and tennis. Kiley began her sophomore year of high school but was only able to attend for two weeks before her declining health forced her to transition to online learning. Even so, she graduated a year early and two in 2020 with strength and determination.

This illness has taken so much, but it hasn’t taken her spirit.

How Can You Help

We are raising funds to cover:

Life-saving surgery and medical expenses

Out of state, travel and lodging

Specialized medication, procedures, and care not covered by insurance

Any amount, no matter how small, makes a difference. More than anything we ask for your prayers, encouragement, and please share this page with others who may feel led to support her

Thank you for standing with us. With your support, we’re believing for healing and restoration for our sweet girl.

From the bottom of our hearts - thank you.

With faith, love, and gratitude.

Jan/Kiley’s family