Support for Noah’s Family through their loss

update 21/06/2024

sadly Noah has grown his angel wings and passed on. I would write more but please understand the pain is unbearable at this time

update 11/06/2024

Sadly this isn’t the update everyone wanted Noah has been placed into palliative care and won’t be coming home. From what the doctors have said we may only have a few days left with our little man. We thank everyone for the support we have received and continue to receive.

The heart disease Noah was diagnosed with is progressive pulmonary vein stenosis. Having this heart disease on top of all of Noah’s other cardiac disorders makes it almost impossible to have a successful operation, or have any of the medications to slow the disease.

Funds received will be used for a professional photographer, hand and feet casting, funeral arrangements and to support Noah’s family through this difficult time

✨update 11/05/2024✨

Noah had his second open heart surgery on the 7/05. He is still recovering in the icu still asleep. Yesterday everything was going well and it looked like Noah’s breathing tube could come out and he could wake up. Sadly when the breathing tube came out Noah did not breath on his own and this ended up with him needing CPR. We are thankful that the doctors were able to re-intubate Noah before anything worse happened.

Noah is currently in a stable condition but we will try again Monday if everything looks good to try and Extubate him.✨

Hi everyone! As some of you may know Noah hasn’t had the best start to his life and sadly has a long journey ahead.

Noah was born on the 14th of February yes a Valentine’s Day baby!

although we were over the moon to meet our son no one could have prepared us for the last 10 and a half weeks. Noah was born a month premature and then was rushed for open heart surgery at just 2 weeks old (37 weeks gestation). After this surgery the surgeons and doctors all thought we would be going home around two weeks later, but that never happened. 8 weeks and one heart procedure later it has been decided that Noah will go for his second open heart surgery in the next week or two.

Noah has 4 cardiac defects.

Pulmonary vein stenosis, tricuspid valve atresia, hypoplastic RY, and Ventricular septal defect.

A CPAP machine is also required 24/7 for Noah.

although Noah faces three more surgeries, the next surgery is by far the scariest with the highest risk rate out of all of them. please, if you can help in anyway we would greatly appreciate it so that we can be by our sons side through this hard time.