Meet Hadlee Jo. Hadlee is our 8 month old heart warrior. Before she was even born, we learned she had multiple severe congenital heart defects and heterotaxy syndrome — a rare condition that caused many of her organs to form abnormally. Hadlee was diagnosed with complex single ventricle heart disease including DORV, an unbalanced AV canal defect, TAPVR, pulmonary stenosis, bilateral SVCs, and asplenia. Her stomach and gallbladder are flipped to the right side, her intestines are malrotated, and she was born without a spleen. From the moment she entered this world, she has fought for her life. At just a few months old, Hadlee underwent her first open heart surgery at Duke Children's Hospital to repair her TAPVR and place a shunt to help blood reach her lungs. Her recovery was anything but easy. What we thought would be weeks in the hospital turned into months of uncertainty, setbacks, procedures, medications, feeding tubes, oxygen scares, sleepless nights, and learning how fragile life could truly be. For months, the hospital became our home. We watched our baby endure more than most adults ever will. There were moments we didn’t know what the future would look like. Moments where we celebrated tiny victories that other families never have to think about — a stable oxygen level, a successful feed, getting off a medication, finally being able to hold her without wires everywhere. After such a long fight, Hadlee finally came home in April. For the first time, we were able to experience pieces of “normal life” together as a family. We got to hear her laugh at home, watch her personality grow, and dream about the future again. But congenital heart disease does not stop. Recently, Hadlee returned to Duke for another cardiac catheterization where doctors found recurrent pulmonary vein stenosis — a serious condition where the veins carrying blood from the lungs back to the heart begin narrowing again. Since then, we have been thrown back into the world of procedures, ICU stays, difficult conversations, and uncertainty about what comes next. Right now, we are taking things one day, one scan, and one procedure at a time. Through everything, Hadlee continues to amaze us. She smiles through things no baby should ever have to endure. She is strong, stubborn, joyful, and deeply loved by so many people. As many of you know, being parents to a medically complex child affects every part of life. Between extended hospital stays, frequent travel to appointments and procedures, time away from work, medical supplies, gas, food during admissions, and caring for our family, the financial strain has been overwhelming at times. We are currently relying on one income while navigating Hadlee’s ongoing medical needs. We never expect anything from anyone, and prayers truly mean the most to us. But so many people have reached out asking how they can support our family, which is why we are sharing this page again. Most of all, we ask for continued prayers for Hadlee. Pray for her heart, her lungs, her veins, her future, and for strength and wisdom for her medical team. She has already beaten so many odds, and we continue to hold onto hope every single day. Thank you for loving our girl.