Megan was very fortunate to be able to take 11 weeks of maternity leave. She went back to work on July 17th and sadly that night Greyson had a horrible choking episode and turned blue, they got him breathing normally and thought he was ok.
The next day Megan could not get him to eat in the morning but assumed he was tired and went to work. All day Grey refused to eat, he ended up with a bad cough, vomiting, and extremely labored breathing. He would stop breathing for 10-30 seconds at a time and gasp for air. They went to the ER and after 5 nurses and 1 anesthesiologist attempted to start an IV line they failed and decided to put in a feeding tube due to his severely dehydrated state. After being admitted into Children's Hospital Omaha, he was scoped and they found he has paradoxical vocal cords, this causes him to have striderous breathing. They also found he suffers from severe acid reflux. At that point they were passed off to a feeding specialist for weekly therapy. Soon after starting feeding therapy they noticed he was no longer able to lift his head on his own, something he has done quite well prior to the choking episode. The feeding specialist also noticed he lost his motor skills of suck, swallow, breath. Now when feeding, he needs to be paced, every 6-8 sucks you have take the bottle out of his mouth or he forgets to breath. With all these new developments the family was referred to a Pulomologist. It was determined he needed a triple scope with GI, ENT, and Pulomonogy. He also needed a brain MRI. With limited resources at the only Children's Hospital in Nebraska these appointments were going to take months to get.
With strong encouragement and support from their pediatrician, Megan and Ian decided to take him to California for a chance at a better quality of care, and easier access to specialists. Since they are originally from the Los Angeles area and have family support, Children's Hospital Los Angeles seemed to be the best option. This has lead to their family being split up between their home in Nebraska so my brother can continue working to provide, and California so Megan can care for the children and take Greyson to specialists in the hopes of getting some answers.
This has become a huge financial burden on the family. Going from a 2 income household to only 1 income has been stressful. Paying for their home in 1 state along with all their monthly bills, as well as trips to the hospital and out of pocket expenses for tests and doctors visits has been adding up. My brother has not been able to be there for his wife or children during this process due to the extreme expense of having a sick child with uncommon symptoms.
They are trying to get the best care for their son and will not be able to go home any time soon. Having a sick child is never something anyone prepares for.
- Nicole Albers
- Ryan and Andrea Kuester
- Aleksis Bocanegra
- Don Brink
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