Grayson Ray was born on August 25, 2015 with a neural tube defect called Spina Bifida Myelomeningocele (SB). The causes of SB are still unknown, yet it affects 1 out of every 1,000 babies born here in the United States.
In Grayson's first hours of life, he underwent 2 major surgeries. The first one was to close his open spinal column. Grayson's second operation was performed to place an external shunt from his brain to an external machine so we could monitor and relieve pressure from cerebral spinal fluid (CSF) buildup. One week later, Grayson endured a third surgery to replace his external shunt with an internal shunt to relieve pressure on his brain from CSF buildup and reroute it to his abdomen where it would be absorbed through his body.
Through all of this, Grayson is a smiling, thriving, little boy who doesn't even flinch when getting his immunizations. He is Mommy and Daddy's very own superman.
Grayson is my first and only child. It is not easy raising a newborn, let alone one with special needs. When I first heard of my sons birth defect, I was terrified. I had never even heard of Spina Bifida! Our journey into this new world of medical jargon has definitely changed our lives in a more fulfilling and loving way.
Grayson and I are asking for help to fund a trip to Bloomington, MN to attend the National Spina Bifida Convention from June 25-June 28 , 2016. I believe attending this convention will help me become a better parent for my son and will show Grayson that he is not alone, that there are hundreds of Spina Bifida warriors just like him!!
The $1900 covers airfare, hotel, transportation, convention entry, and meals for Grayson and Mommy!
We appreciate all the love and help we can get to make this trip possible for us. Thank you for taking the time to read Grayson's story!
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- Oksana Naidu
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- Oksana Naidu
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