Medical bills/expenses

After quite some time I finally have some idea about what is going on with me. I have Antiphospholipid Syndrome and a complication of that I also have a Portal Vein Thrombosis. I believe that God is putting the right people in my path to get through this regardless of what that means. (His will is my will-whatever it is, however I do not wish to leave my family with medical bills and expenses they did not help to occur should His will be to call me home)
    I am finding myself becoming ovewhelmed with medical expenses that the insurance is not covering. Bills roll in several thousands of dollars each. Each doctors appointment seems to come with a new hurdle for me.
 Some of the things I have to look forward to are:
**An upcoming trip to St. Luke's to be evaluated for potential liver transplant or other options for my conditions
**A bone marrow biopsy
**Currently getting two shots a day and taking a list of meds a page long
**Frequent expensive but necessary CTs / MRIs
**Frequent lab work