...Dr. Adam Marks, Arbor Hospice discontinued seizure medication upon discharge from Hospice Intake to Villa Park Ridge, October 21. I asked for her to be on something for the disorder which "officially" began on September 13.

...I did indeed follow their covid protocol, though I was often told differing measures to take while visiting, as some staff were unclear alongside the government rescinding and changing their guidelines during this time.

...Mom came to live with me on November 24.

...the initial Arbor nurse, Chris Heikka had agreed that since we didn't want morphine, we didn't need to have it.

...I explained a possible theory of multiple personalities and referenced an exorcism in relation to that; NOT the seizures; since being prescribed Keppra on January 20, I had administered it to her as prescribed.

...I had inquired with Arbor many times about my mom's desires for plan of care, respite, Durable Medical Equipment and Supplies...and, informed them I was going to look at other agencies.

...I had interviewed several, one ready to take her, but they and all the others said that she was a great candidate for home health since Hospice was not the right move for her at that time.

...I had given my mom psilocybin after discussing and getting approval with Hospice Doctor and Villa Nurse Practitioner Christine Johnson. I discontinued this when the U-M neurologist stated this may not be a good fit for someone with a history of mental issues.

...Hospice discharged mom claiming I had already signed up with a new company, February 21.

...I had called many times before AND after to plead with them to remove the faulty catheter they put in mere days prior...since no coverage existed for a nurse or doctor due to Medicaid not releasing her from Hospice diagnosis for another eleven days.

......on April 21, I explained to a medical assistant outside the ER that I hadn't slept much the day prior and that, though she missed two doses of Keppra  in the previous week, I doubled the dose , as directed by doctor.

...I also stated that I had given four measured syringes of liquid Arivan during the seizure episode, as directed.

...the blood work from the ER will show Keppra!

...the bedsheet will show sweat and prune juice!!

...the tempurpaedic mattress she was on was stained, from other hired agency aides who had left her wet; I had dried and sanitized that mattress and she was free from even a speck of feces.

...I provided complete, accurate information to APS. I know they didn't come to the home on April 21st, as my sister got a call from them when my mom was in the ambulance. They would have found the house doors open, with my box of money, sunglasses and cell phone still sitting outside the front door, as I left them in the rush to follow behind the ambulance.

...I told the paramedics on scene that I had her medications memorized and that there was already an updated chart with medical history in the file at the hospital. I did behave erratic,  though with my mom having a seizure,  me moving stuff out of the way for the paramedics to come in, getting the oxygen tank, putting a bag together of my mom's belongings, starting my van,   then being told I was unable to ride with nor visit with her due to covid spike, regardless of her being unresponsive with me being her support, son, caregiver and guardian...I was surely not so hysterical to have police called...as they arrived as a medical assist.  Further, I said to my mom during the 911 call that she wouldn't get, as she puts it, "toy-arrrested."
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Pertinent Timeline (still not detailed enough) :

September 13 2020-my mom had an aspiration episode and a seizure while housed at the MarvinBettyDanto facility  in WestBloomfield...sending her to HenryFord Hospital for three weeks then sending her to Hospices intake even after recovering far better than her prior baseline and surely not needing the PEG tube which was ordered upon admission...only having hospice designation from a Parkinson diagnosis which had been previously  and since been confirmed as Parkinsonianism.

...Nov. 24 2020- mom discharged from Villa Park Ridge to my care at home 765 Waterman

...APS was alerted on this day to concerns for her safety, presumably based on conversations regarding her condition,  care, alongside their obligations to follow Medicaid rules I had with high personnel at Arbor Hospice (she was in the intake in Saline there for three weeks prior to a  month spent at Villa in Ypsilanti)

...Nov. 25- I was happy to receive  a call from APS informing  me that they were called to check in on me and my mom, as I invited them to come to the home and truly investigate the care for my mom.

...Nov.'20---Jan.'21-I met and provided for ALL of the needs of my mom, with the limited assistance of a home health aide from the hospice, private pay caregivers, and visits from various hospice nurses and staff.

(...Dec. 21-my mom requested a female charge nurse, so we requested this and started with Lori RN, and no longer Christopher Heikka RN)

...Jan.20- my mom had a major seizure  at home (she was provided absolutely  no seizure meds even when I inquired and requested something since the first episode in September and I called for an ambulance.  Hours prior to this,  I knew something was wrong with her breathing...and there was emesis...I made calls to the Hospice agency since I was instructed  not to call 911...i was told to keep an eye on her...when the seizure occurred, hospice did actually arrive and still did not want An ambulance since there was an insurance conflict...when they found she would be going to the hospital for a different reason than being on hospice,  they "allowed" it.

...Jan. 23- my mom returned home with me with a prescription for Keppra  seizure medication which I administered  to her as directed,  1000mg daily

(I have had a lot of information regarding specific  dates and times in a previous device which is no rendered broken)

...Approx. Feb.16-the hospice company, upon my inquiry, inserted a catheter for a few days...so that she could sleep a little more uninterrupted without waking up wet and that I could also sleep some more too. I realized it was leaking upon the first day...and got an on-call nurse to remove and replace it...following day had a community  paramedic  arrive to determine  that it was low on fluid and inserted more saline into it...the nurse who wound up coming with APS claimed she was going to remove the catheter upon my request and concern...but stated she was unable to since she didn't feel she was well equipped to enter the tube into my mom due to her contractures...while I was able to work with my mom to help her relax her legs, with the assistance  of the previous on-call nurse...

...approx.  Feb 17- Rita Sharma APS and Lori from Arbor (unannounced..as I found out this day that they are the ones who called APS) arrive at the home  for an hour visit...accusing me of not providing  medications as directed...wherein there was nothing from them I had been given for my mom which I was not providing for her. I believe the medication in question was morphine which,  upon discussion with the previous nurse,  we did not receive on our "comfort  pack." I was providing Arnica and Cannabis for pain, and   it was approved by the previous nurse (since no doctor was ever available through hospice)...and those were absolutely  working for my mom.

...Feb. 19-- Arbor tells APS who tells me that they want to remove us as clients due to indifferences so I was given the suggestion of finding another hospice company;  I called and interviewed  several and was told by most that she had recovered so well, didn't require hospice,  and that home health through medicaid would be a better fit. Arbor dropped my mom anyhow claiming that I had signed up with another company...which I did set up a future interview being assured we were still covered by arbor hospice...and they had no proof of their claim I had switched providers. Arbor then told APS they are afraid to bring staff to the house....not once consulting the many staff who entered the home and met with us, let alone the aide who saw my mom, her body, the home, my care for her, how my mom was improving  on so many levels, aside from having each one of her needs met beyond what more likely could and would be done in any facility 
with Medicaid limitations, as well as staffing issues. 

...Feb. 21-still knowing there was something  wrong with the catheter,  I pleaded with Arbor to come and remove the catheter..since medicaid had her listed still as hospice,  no doctor possible or any way to get another agency. We were also counting on a nurse on call to come and assist with suppositories (which I had at the home) when there hadn't been a bowel movement in three days...I was told to call emergency...but I reached out again to community paramedic who sent an ambulance...my mom was waking up when they arrived with a low blood pressure so EMS stated they were obligated  to take her...even when her BP rose to normal levels before getting in the ambulance; she was admitted for constipation...which was an 18 hour admission...with me changing her, cleaning her and reporting to the ER staff....then discharged back home.

...approx.  March 9--after knowing something was really wrong with the catheter and wanting it removed with no one able to touch it...even after we had signed up with PCP and a variety of home health agencies, I called for ambulance when I saw the motor skills and cognitive gains she had improved on over the time together and off the psych pills had started to drastically decline...I had suspected UTI for over two weeks...and this is what she had...she spent nearly three weeks at U-M where there was question brought up about my ability to care for her at home...they provided antibiotics ...and even though a discharge seemed feasible after the infection cleared up,  they sent her home to me with IV antibiotics to be administered at home...with follow up from Michigan Medicine Visiting Nurses...negating our previous home health agency...and disallowing a pending one; it was determined her infection had cleared...we did not get all of the visits we were scheduled to have...but Social Work, Nurses, Aides,  all had a different  story to me regarding my mom's care  than what was represented  in the courtroom. Their stopping of services was stated that Elara  Home Health was ready to take over...which didn't get completed either....

...Approx. March 22-April 21-mom  was with me, again having all.of her needs exceedingly  met, accompanied by the assistance of private caregivers and personel...while I continued to reach out for help, aid, and knowledge of other professionals...meanwhile  continuously being forthright  and honest with every agency and staff interested in my mom's care...including the APS.

....incidentally,  I had inquired with many companies for help and programs of a variety of types,  including Area Agency on Aging...who were with us from the beginning of care at home...receiving  no help until two workers show up in early April unequipped and unprepared to provide incontinence  care and feminine  hygiene even when they were represented as folks that would be able and willing to do these two tasks of priority for my ma. Area Agency claims we were given AND received 23 hours a day of home health care; we received about 18 hours total over a two week period and when I called the contracted company about the abilities and expectations of the workers as to if they were to be merely sitters or actual givers of care, the company dropped our case...all going back to APS now claiming that we could not work with Area Agency even after all the care and staff they provided.

I know this is not concise, but it is somewhat  chronological.  There is truly so much more as far as details; there truly has been no thorough  investigation regarding my mom, her care by me at home,  nor the home itself.

I do not feel she will be improving  in a facility...as she was on many fronts with me at home. I am still very concerned about her overall well being, especially  now that it appears she has no medical and family history following her, with very little direct involvement for her absolute best interest(s). 

I have spent wisely, and I've foolishly $pent. I saved for a place I was able to secure so my mom, her safety and care was and is nurturing. I've paid for supplies, equipment, qualified staff and much more to maintain a healthy, loving, caring, and curing environment for my mom, Miss Doreen S .BERG

As my heart and soul aches beyond belief as her care plan gets turned around, and I'm crying more than I ever have...

There has been so much said of me that isn't true at all regarding my mom. There is enough hard proof to back up my words. It's not so much that it hurts so much to know that so many of these statements are false from the EMT and APS reports; it's the lack of real fact-checking and thorough investigation. ...and, my mom is caught in the middle of this all.

I am so glad that there are agencies, neighbors, mandatory responders, concerned citizens here to help protect vulnerable people. I'm so sad that by me talking in an otherwise uncivil manner, I've made people so upset as to say things that are so blatantly untrue, exaggerated, hurtful, and harmful to me, my sister...especially to my mom.

I do know I can be, from time to time, sarcastic, and what may be considered rude and mean. These are aspects to me I m aware of and push myself to change, redirecting the bad energy to good. As we all do, I have some really exquisite qualities. I push myself to use them all for the good and the positive...I gave and give everything good for my mom.

I and we thank you and you and you for your good energy, time...and money that'll be used for the truth, her health and happiness.