Miss (Tara) Serafine Chappelear, MissWaffles Mommy

After a lifetime of battling a crushingly painful, genetic disease called chronic pancreatitis in it's deadliest genetic, undocumented DNA string, I had a life saving operation in 2012. This high risk, 16 hour operation is called a (TP-IAT), total pancreatectomy islet cell auto-transplant, was successfully done at the University of Minnesota Fairview. After completely removing several organs and rebuilding my entire GI tract, my life was saved, until it required several additional complex operations from genetic, surgical complications all rooting from a genetics grab bag of bad genetics ->deadly strain of pancreatitis, hypoglycemia, visceral hypersensitivity syndrome, esophageal dysplasia and so much more to save some of my privacy. After 2 years of recovering I worked hard with awesome friends at PETCO. #[email redacted]a.C July 2017 I had another big operation, this time at UCSD, removing nearly my entire stomach, even more intestines, replaced and rebuilt the duodenum, straightened out my seriously mangled bowels and repaired several internal and external defects. I started to make significant progress to keep me on track to return back to work, again, and then October fifth something horrific changed and the recovery trajectory reversed so significantly, I was in, and still am, in complete and utter agony. Luckily, the night before I'd set my alarm for an early morning GI doctors appointment at UCSD in La Jolla. The doctor took one look at me and admitted me directly into the hospital. From that moment on, I was hospitalized for months become paralyzed from pain need lifts then I entered into Tara 2.0 :) . Not including the multiple hospitalizations, ER visits, clinic appointments done after the significant surgery in July. I spent nearly two months in UCSD hospital crippling in pain, struggling to survive. A PICC line was place and tube feeds (TPN) started, fluids, medicines and testing began in an attempt to address my suffering from a brand new pain on my left abdomen paired with serious bowel issues along with hypotension, malnutrition, serious malabsorption, gastroparesis, bladder and bowel incontinence, escalating severe hypoglycemia, DTV and so much more. After being in UCSD for nearly 2 months they'd given up on me and their ability to find a diagnosis thus sending me to a step down hospital where I had been suffering at since 11/19/17. I have a history of serious soft tissue gastro intestinal issues not showing on any imaging and being misread by the radiologist and then found in surgery. I have to have more operations this fourth quarter, and then that will be my last operation hopefully. 2021. My specialist all agree that this decision could end in helping after a protracted recovery and should be done with risk. The chief of surgery at OSU will fix what he sees, then wrap me up in mesh and get out. The mesh will go from under my breast to pelvic and wrap around the sides. I’ll be human sushi :) My decision to operate will shorten my life span, but will, hopefully a higher quality of life and protracted recovery Your donations go towards operations, double lumen power ports for hydration, doctors, health insurance out of pocket maxes, ambulance rides, hospital and clinic visits, medication, blood tests, diagnostic i.e.: CAT scans, X-rays, MRI's ect., rehabilitation, travel and living expenses to see out of state top of the line hospital, housing, transportation, eastern medicine, home health care, TPN - IV tube feeding and so much more.