Help Get Trevor to Children's Mercy

My name is Jennifer Harness and I am trying to raise money for my Godson Trevor Duncan. When Trevor was three he was diagnosed with a rare disease called Synovial Osteochondromatosis. Eight years ago, his Dr. at Children's Mercy in Kansas City told his parents that when he was done growing, he would need surgery to fix the multiple affected areas. Most of the time with this disease only one joint is affected. However, in Trevor's case, he is special (just ask his Godmother!). He has benign bone tumors on his right elbow, left hip, and on the inside of both knees. Trevor has limited mobility in his right arm, and has pain if he puts too much pressure on any of the affected areas. If left untreated the disease can cause osteoarthritis, locking of the joints, and in rare cases paralysis, or the benign tumors becoming malignant. Trevor is 16 years old and has a whole lifetime to live.  He is getting ready to be a Junior at Derby High School and is currently working towards his rank of Eagle Scout.  He lives with his parents Matt and Erin and his twin sisters Nora and Myia.  Please help me raise money to help cover his ongoing medical costs. He has waited eight years for this and his surgery is scheduled for October 23, 2017! If you cannot donate, please consider sharing this campaign on your social media. Anything you can give will be much appreciated, and will help relieve some of the financial burden it takes on a family with a child who has on going treatment.


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Organizer and beneficiary

Jennifer Harness 
Udall, KS
Erin Groom Duncan 
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