- K
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- M
Hi everyone. I have hesitated sharing this since recently finding out but it has come to the point where I need help and support from anyone that can give.
As most of you know, I found out I was pregnant in November. Nervous and excited I was ready to become a mom. At 17 weeks pregnant I found out that I was having a baby girl by blood test. Orion and I decided to name her Charlotte Angelina Huff. We started collecting baby stuff for her, and I became even more excited to meet my baby girl.
At my 20 week ultrasound it was found that half of her heart was abnormally large. Since healthcare in Humboldt county sucks, and the ultrasound machine here is only a level 1, the doctors here couldn’t really tell me anything. I was referred down to UCSF for better care. There Orion and I got the worst news of our lives, that our daughter had a congenital heart defect called Ebsteins, as well as a few other problems with her heart. The specialist gives her a 30% chance to make it to term and even if she does she will need surgery immediately after she is born.
With all this being said, Orion is having to miss work for my appointments. I want him to be able to go with me because we will never know or be able to predict the outcome of each appointment. We have no car, and have been using the free ride services through my insurance to get rides to my appointments. We had to hear the worst news of our lives and then ride back 4 hours home with a complete stranger. I didn’t feel comfortable enough to even cry, although I did, silently, the whole 4 hours back home.
With all of this being said; my appointments are going to become more frequent. Having no car really just adds to the stress. We are not having a baby shower or registry because of the unknown outcome of our daughter. Instead, I am asking for donations to help Orion, Charlotte and I get a car for her appointments.

