Josh is a production supervisor at Lavelle in Burlington, and Rita is a 911 Telecommunicator for the City of Lake Geneva Police Department.
Finley had some low oxygenation, but was otherwise perfect! When Finley was three days old, she had her first pediatrician visit, where they discovered a heart murmur. A repeat on the oxygen testing showed higher numbers, so she was referred to get an echocardiogram sometime in the following week to look into the murmur. The next day, when Finley was four days old, Rita's amazing midwives stopped by the house to repeat the oxygen test again. Kimberly, the midwife, seemed to sense that something wasn't quite right. Finley was once again showing numbers too low, and it was discovered that the pediatricians office performed the test incorrectly the day before, giving a false sense of security.
Josh and Rita brought Finley back to the doctor immediately, where the test was again performed (the right way), and the consistent low oxygen and murmur was met with more concern.
Finley was transported via ambulance to Children's Hospital, where she was admitted to the NICU immediately for testing. After lots of tests, Finley was given two diagnoses: Tetralogy of Fallot, which is a specific set of four heart defects; and Heterotaxy, a rare occurrence where the abdominal organs grow on opposite sides of the body.
Finley has earned a reputation in the NICU for being strong willed and stubborn, and that kind of attitude is good, because Finley is going to require heart surgery to correct her heart defects. The other organs are all okay, just reversed in the body, but she will require medication daily to ensure she doesn't catch any sort of infection.
This GoFundMe has been created to help Josh and Rita feel comfortable caring for their family - Finley also has a big brother, Renly, and a big sister, Greenlee. Josh and Rita both work, and FMLA is rapidly running out. If Rita doesn't return to work in August, the family will have to pay for their insurance out of pocket, as Rita's employer covers it currently, but only as long as FMLA is in place. The insurance for the family would be well over $2000 a month out of pocket. Finley's surgery will likely be in August or September, and we would like to raise funds so that Rita doesn't have to choose between working or caring for her baby who is having heart surgery.
With FMLA running out, paid time off is also disappearing, and we would like to ensure that the families needs are met without the family needing to worry about it.
Funds will also help, as Finley will require lots of monitoring as they wait for surgery, which means lots of trips back and forth to Milwaukee from Lake Geneva.
We appreciate your donation, and please know that the peace and comfort it will give this amazing family is worth so much. These parents are incredibly humble, hardworking people, and they deserve the peace of mind of not having to worry about money during this incredibly stressful time. Thank you!
- Angela Hudy
- Mackenzie Brandt
- gerald Kapis
Organizer and beneficiary
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