Fight For Sol: Urgent Brain Cancer Appeal

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862 donors
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$123,456 raised of $150K AUD

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Fight For Sol: Urgent Brain Cancer Appeal

Fight For Sol: Urgent Brain Cancer Appeal

0% complete

$123,456 raised of $150K AUD

862 donations
Donation protected
Sol is fighting for his life, and we need your help to give him every possible chance.
Sol Keys is just 30 years old. He is adventurous, kind-hearted, full of life, and deeply loved by his family and friends. He has so much more living to do, so many places to see, and so many memories left to make.
In July 2026, our world was turned upside down when Sol was diagnosed with H3K27-altered diffuse midline glioma, an extremely rare and aggressive form of brain cancer. This devastating diagnosis came less than a year after our family tragically lost Sol’s beloved brother, Beau. The thought of facing another unimaginable loss is heartbreaking. But despite everything, Sol continues to fight, and we are doing absolutely everything in our power to fight alongside him.
A New Hope: ONC201 Since his diagnosis, Sol has undergone radiation treatment, and we have been desperately searching for treatment options that could give him more time. We have now managed to access ONC201, a treatment developed for this rare type of brain cancer. Sol has recently taken his fourth dose, and incredibly, we are already seeing encouraging improvements.
While we know there are no guarantees, these changes have given our family renewed hope. Unfortunately, despite our efforts to access the medication through compassionate pathways in Australia, we are still having to import it privately from Germany. The cost is an overwhelming $3,500 every single week. That’s more than $180,000 a year just to maintain access to this one medication. No family should have to face the possibility of losing access to a potentially life-extending treatment because of money. Our Next Fight: CAR-T Cell Therapy
While continuing ONC201, we are now also pursuing another promising avenue: CAR-T cell therapy. CAR-T is an innovative form of immunotherapy that uses specially modified immune cells to recognise and attack cancer cells. Researchers are investigating its potential for aggressive brain cancers like Sol’s. Although this treatment is still experimental and access is extremely limited, we are determined to explore every opportunity available to him. This may involve international specialists, clinical trials, travel and significant additional expenses. We don’t know what the future holds, but we do know that we aren’t ready to stop searching for options. How Your Donation Helps
Every donation helps us continue fighting for Sol by contributing towards:
 * ONC201 medication: $3,500 every week to maintain his current treatment.
* CAR-T therapy opportunities: Exploring potential clinical trials, specialist consultations and treatment pathways.
* Medical and travel expenses: Costs associated with accessing treatment, potentially overseas.
* Supporting Sol and his family: Helping ease the financial pressure so they can focus on what matters most — spending precious time together.
Please Help Us Keep Fighting for Sol  Sol is more than his diagnosis. He’s a son, a brother, an uncle, a friend, and someone who brings so much love and happiness to the people around him. We are holding on to every improvement, every possibility, and every precious moment. We know that no treatment comes with guarantees. But as long as there are options worth exploring, we want Sol to have the opportunity to explore them. If you can donate, no matter how small, you are helping us continue this fight. If you can’t donate, please share Sol’s story. Every share helps us reach more people who may be able to support us. To everyone who has already donated, shared, reached out, or supported our family, thank you from the bottom of our hearts. Your kindness has carried us through some of the darkest moments of our lives. We aren’t just raising money. We’re fighting for more time, more memories, and more life with
Sol.
With all our love and gratitude,
 Sol’s family
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Co-organizers4

Bonnie Webb-Hay
Organizer
Kahibah
Ruby Keys
Beneficiary
Sol Keys
Co-organizer
Tiarn Keys
Co-organizer
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