A FRANtastic Adios to MS May 2020

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Se recaudaron $18,683 de 65 mil.

A FRANtastic Adios to MS May 2020

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Help Frances get a Stem Cell Transplant to STOP HER MS NOW!

May 2020 date is confirmed. Now we need to finish what we started and get the funding.

Symptoms of seizures, loss of sensation and nerve transmission on right hand side, Vision issues  -  nerve damage on face —— all of these signs remind us of how much we need to STOP HER MS NOW! 

The steroids prescribed during relapses quell the inflammatory issues but they do not repair the accumulation of the degenerative results of this disease.

It is more important now than ever before that we take steps to STOP HER MS NOW. 


We need to STOP HER MS NOW.

Frances and her sister met with Dr. Ruiz at a conference in Texas in March 2019. After speaking with him, they determined that Frances could benefit from this treatment. Her MS hug, brain fog and cognitive issues could improve so we applied and were accepted for Monterrey, Mexico. Mexico follows the same protocol as the US trials and the cost is a lot less. $56,500.00 for the treatment. Add the cost of flights, lost wages and aftercare and we need to raise approximately $65-70k.


Please read her story below to see how this all started for her.


What would you do if you woke up in a colorless world? 

Frances did one morning back in 2007.   That was her first symptom of MS.  Although there were bladder symptoms back in 1990's that she dismissed.  She started some harsh treatments to try to manage her MS.  From daily shots that burned and ate away at her flesh to weekly injections that left her in bed with flu like symptoms to a monthly infusion that carries the risk of an incurable and fatal brain disease.   She is currently on the most recently developed meds but each infusion leaves her with flu like symptoms that last 7-14 days which leaves her bedridden and unable to work. She has tried them all but still her MS progresses.  Images race through her mind of once strong, driven individual who will digress to life in a wheelchair, fragile and dependent. 

On good days- she is focused on being fit, working out and eating healthy.  On bad days, she deals with vision issues, bladder dysfunction, nerve pain, weakness, cognitive difficulties, severe fatigue and muscle spasticity.  Sometimes getting out of bed is too much of an effort.  MS is a progressively debilitating disease and it continues to take bits and pieces of Fran’s life.  We need you to help her get life changing treatment. 

Truth is - Time is critical. Time is Brain.  Frances’ functionality is declining and her symptoms are hindering her day-to-day life. Heartbreakingly she has admitted, “It’s becoming more and more of a battle and sometimes I feel like I’m losing”.   It is usually around the ten year mark that the disease begins to progress faster than the medicines can stall it. She is fortunate that it has not started its inevitable attack on her spine.  But every MRI shows more brain loss and more lesions.  



But there is a solution!  Frances’ final hope is HSCT.   It is a Bone Marrow Transplant. It is a treatment where her stem cells are harvested.  Her immune system is destroyed with several rounds of chemotherapy and her filtered stem cells are infused back into her.  Patients who have been treated with this therapy prove that it STOPs the progression of MS.  It does not come without risk, but the mortality rate of the chemo is lower than the mortality rate for the toxic and ineffective drugs she is currently prescribed.  With this treatment she can halt the progression of her disease.  She can continue to work and provide for her family and she can continue to be the fit, healthy and adventurous Gramma Frances.  When she finally wins her battle she wants to help others in their fight for this treatment. 

Asking for help does not come easy to Frances so we are doing this for her.  We want all of you to join in her fearless battle against MS. The funds raised will be needed to cover the treatment costs, airfare, after care, medications, food, travel expenses and much more including the recovery process, time out of work, doctor visits, physical therapy, follow ups and more for the first year after the procedure while her new immune system builds.

We need all of you to help us reach our goal. Funds need to be committed by February 2020 to keep her confirmed spot in May 2020.

This is our chance to join this incredible woman in her battle to beat the odds.   Frances has a lot of fight left in her, but she needs your help.  Because of you and your generosity her life will be forever changed.  Please share. 




A FRANTASTIC VOYAGE: 
HELP FRANCESCA  STOP HER MS NOW!

Mailing Address:

Frances Neubert
PO Box 1946
Cicero, NY 13039

Organizador

Francesca Hubbard Neubert
Organizador
Cicero, NY
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