Fundraiser for the Amazing Evie (aged 3)

Evie is my best friend’s daughter and the light of her family’s life.  She is a funny, fiesty, determined three year old and she has a rare condition called Aicardi syndrome. She lives in Dublin with her mum Vickyand her dad Paul.  

Evie suffers from seizures every day, has global developmental delays, has a visual impairment and currently relies on an NG tube for liquids and medications.

Evie is a fighter and she is making the most amazing progress with the determined help of her parents and wider family. In order to provide Evie with the best quality of life, she attends many therapies including equine therapy, speech and language, occupational therapy, physiotherapy and has made incredible progress using the Anat Baniel Method.  

I would like to support my good friends in helping them provide Evie with the therapies she has so clearly benefitted from by doing a sponsored half marathon run in May.  

From Vicky and Paul (Evie’s parents):

“We are extremely grateful for the support of all of our family and friends in helping us. It’s always very scary when you get a diagnosis like Aicardi syndrome as so little is known about what the future will look like for Evie. Our attitude has always remained completely positive and we are only interested in helping her enjoy the best possible quality of life, whatever that might be for her. Evie makes every day better with her amazing, gorgeous smile, her lovely nature of taking everything in her stride, regardless of what is thrown at her. She teaches us so much about the importance of living for every moment and never ceases to amaze us with her determination. She has made incredible progress with all of her therapies and we are so proud of our beautiful, brave daughter.”

Thank you for showing your support in whatever way you can xx