Our baby Jase was born on January 17th, 2018 with Apert Syndrome. Apert Syndrome is a genetic disorder characterized by the premature fusion of certain skull bones (craniosynostosis). This early fusion prevents the skull from growing normally and affects the shape of the head and face. The midfacial bones are smaller and underdeveloped and the fingers and toes are fused together. Apert syndrome has also caused Jase to have Shone's complex of the heart which needs open heart surgery to repair.
Jase and his family have a long road ahead of them, with many surgeries and other procedures. All of Jase's surgeries will be in Seattle. Jase will need several surgeries to reshape his skull to allow his brain to grow, restructuring his face so he can breathe, see and hear better. Jase will need many surgeries on his hands and possibly his feet, to separate his fingers so that he can have as much use of his hands as possible. Along with all of the surgeries Jase will have to go through, he will have many other doctors he will have to see weekly here in Missoula.
Jase's parents are Rod and Ashley Leister, and Jase has two older sisters, Ellie and Scarlett. Jase's family is going to need help with medical bills, travel expenses, and time off of work. Along with monetary donations their family will also need help with child care for Ellie and Scarlett as Jase has many doctor appointments each week.
Anything you can do to help out is greatly appreciated.
We will post updates on Jase's progress as much as we can. Jase's parents are beside themselves, as none of the ultrasounds showed any signs that anything was wrong or out of the ordinary. And on top of all of this, they were forced to move less than a week after Jase was born because the house they were living in was sold.
Thank you, again
To follow along and get up day to day updates on Jase's care and medical journey please join his facebook group, Embracing Jase, at the link.