Declan Hickey is 12 years old. He was born with Duchenes Muscular Dystrophy. He is also a human encyclopedia of sports trivia and American civics. He knows all the best late-night comedy videos on Youtube. He is a skilled story teller and rocks out with musicians. Like all good big brothers, when he is not torturing her, he adores his little sister, Niamh.
Declan and Niamh
Declan's parents, Aisling (Dashi*) Flangan Hickey and Jack Hickey, have been raising their two remarkable children in Kingston, MA. They have built a thriving and happy family that remains their center point and anchor even with the demands and stressors of managing a serious illness.
This summer Declan stopped walking.
Duchenes is a disease caused by a mutation in the dystrophin gene. It leads to progressive muscle weakness. Over his lifetime, the disease has slowly been taking its toll on Declan. This summer he stopped walking due to compression fractures in his spine which made movement painful. With new treatment he has improved but Declan now has to rely more on his scooter and wheelchair for mobility.
A Wheelchair Van:
The Hickeys need a van with a ramp and other mobility modifications to make it possible for Declan to get to his doctors appointments in Boston. And, to more ball games! A van makes it possible for Declan to get out with his family and keep his world open.
You can help make a difference!
Any amount you can give to keep Declan mobile will make a difference. As we all know, it takes a village. Please become a part of Declan's community of support.
Help us get the word out.
Please share my link to your Facebook Timeline or email. Talk about Declan and Duchenes Muscular Dystrophy to keep this story alive in peoples hearts.
Thank you for your generous support.
*Those of us who have grown up with Aisling will always think of her by her nickname, Dashi, so named when her big sisters wanted a reindeer (Dasher) rather than a baby.SaveSave
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- Gary Shane
- Boston Groupie News
- Doin' It for Declan Tavern at the End of the World
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