My daughter Danielle is ill. In February of this year she began experiencing acute pain in her hands and feet. Her condition worsened and she was first hospitalized in March. Over the course of four agonizing weeks she lost the ability to walk. Her doctors were unsure of her diagnosis and began treatments for an autoimmune disorder. This included infusions of steroids, many different pills and other ineffective treatments. She continued to decline landing her in the ER following several poor drug interactions, extreme swelling, and sores forming on her hands. It was there she was diagnosed with Erythromelagia. Erythromelalgia, formerly known as Mitchell's disease, is a rare neurovascular peripheral pain disorder in which blood vessels, usually in the lower extremities or hands, are episodically blocked (frequently on and off daily), then become hyperemic and inflamed. There is severe burning pain (in the small fiber sensory nerves) and skin redness. In the U.S. the incidence of EM (the number of people a year diagnosed with EM) is 2 per 100,000 per year. There is currently no cure for this disease.
What would you do if you knew that money was the only thing standing between your child and their chance at a full and happy life? What would any parent do?
My name is Denise McClelland. I started this campaign using my daughters facebook be cause her network was much larger than my own. Together we can help put her life back on track.
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