
Cliff's Medical Expenses, CANCER
CLIFFORD J. WAGNER, CANCER CONDITIONS, DIAGNOSIS, FINANCIAL NEEDS....
I NEED YOUR FINANCIAL HELP TO RAISE MONEY FOR MEDICAL TREATMENTS OF MULTIPLE-MYELOMA MY TERMINAL CANCER!!
READ MY STORY BELOW AND VIEW THE EDUCATIONAL VIDEOS, PLEASE HELP THE CAUSE!!
That is where all of you and those you know and can contact on my behalf, whether it be an organization, local business, or a personal acquaintance and or relatives and friends, PLEASE REACH OUT TO THEM AND HELP ME TO LIVE A LONGER LIFE! I NEED YOUR HELP, PLEASE DO, Thank You and GOD Bless!! Clifford Wagner.
Dear Potential Donor,
I have TERMINAL STAGE 3 Multiple Myeloma Cancer (there is no 4th stage with this Cancer), I have an excess number of Platelets in my Blood with this particular Strain of the Cancer, which only 1 in 200 of the people who get Multiple Myeloma have. As an example, whereas the average person has 300 Platelets in their blood and when I entered the Hospital I had 9,800 and thus my blood was so thick I could Not begin Chemotherapy until that number was reduced through the process of 3 Blood Transfusions and also 3 rounds of Dialysis.
THIS IS THE MACHINE THAT DIVIDED UP MY BLOOD PLATELETS WHILE I WAS CONNECTED TO IT, AS I TOOK THE PHOTO WHILE DURING THE PROCESS THAT TOOK 3 HOURS TO DO EACH SESSION.
THIS IS THE I.V. IN WHICH THEY CONNECTED TO ME FOR THIS 3 HOUR PROCESS, BELOW IS WHAT THE AREA AROUND THE IV LOOKS LIKE FROM THE PROCESS BEING COMPLETED.
TO PROVIDE YOU WITH AN IDEA OF HOW BRUISED, BLACK AND BLUE THE AREA WAS, THE SMALL DOT IS REFLECTIVE OF THE PREVIOUS PHOTO OF WHERE THE NEEDLE WAS INSERTED, THE AREA ABOVE AND HOW IT LOOKED, WAS STRETCHED FROM MY HIP, ACROSS MY BODY AND DOWN TO MY KNEE. I HAVE HAD TO DO THIS 3 TIMES SO FAR AND I WILL NEED TO DO THIS AT LEAST THAT MANY TIMES BY YEAR END, AS WELL AS MULTIPLE BLOOD TRANSFUSIONS.This X-ray was evidence after ONLY 5 MONTHS (X-ray taken 12/2017) the Shaded Area, Also Marked in a DUPLICATE X-ray Image in YELLOW. These areas of my Skull have been deteriorated due to the TERMINAL CANCER MULTIPLE MYELOMA, AND ITS FINAL STAGE. The Damage to my Skull is NOW GREATER than it is after only 5 months, however, through 10 months of extensive Chemotherapy and having a series of other treatments and medications, this including the 45 prescription medications I take daily from the Pharmacy.
The SLOWING DOWN of the CANCERS PROGRESSION has been successful and brings me to the point that a series of Bone Marrow Transplants will help sustain and or extend my life span. As well as improve on the quality of my life and decrease the PAIN I EXPERIENCE ALL OVER MY BODY, WHERE THERE IS A BONE IT HAS PAIN, ++ THE OTHER CONDITIONS WITH GREATER SEVERITY OF CANCER DAMAGE. The experience makes me feel as if I had ACID for BLOOD, which the Medical Practitioners I have had treat me, treated me as such. As I had 3 BLOOD TRANSFUSIONS and a Series of Blood Cycles. Whereas ALL of my blood is pumped and drained from my body using the main Artery near my groin, filtered and separated by Cells, Platelets, etc. and REMOVED THE EXCESS CANCER GENERATED PROTEINS CELLS THAT THE CANCER IS PRODUCING, ETC.
My Multiple Myeloma Cancer of which ONLY ½ of ONE % get per year and ONE IN TWO HUNDRED GET THE MORE SEVERE VERSION WITH ADDITIONAL BLOOD ISSUES FROM EXCESS PRODUCTION OF PROTEINS /CELLS/DRONES, thickening my blood to such a level, that I needed to do all that mentioned above just to thin down my blood to JUST BE ABLE TO RECEIVE CHEMOTHERAPY. As an example my Blood Count for this Excess Production was at 9,800 when I entered the Hospital the last few days in November of 2017, when the average person has a Count of 300. I finally went to the EMERGENCY ROOM when I could not take the pain anymore, only to find out I had 2 Broken Ribs, 3 Fractures in my Spine, All of the BONE DAMAGE / DETERIORATION, KIDNEY DAMAGE, SPINAL CORD DAMAGE, ALL OF BONE MARROW DEPLETED, IMMUNE SYSTEM CRITICAL, As an example of that I caught Pneumonia 3 times in 6 months.
That is where all of you and those you know and can contact on my behalf, whether it be an organization, local business, or a personal acquaintance and or relatives and friends, PLEASE REACH OUT TO THEM AND HELP ME TO LIVE A LONGER LIFE! I NEED YOUR HELP, PLEASE DO, Thank You and GOD Bless!!
The cancer has consumed all my bone marrow, eaten away at my skull, chest, ribs, lumbar/spine, and my spinal vertebrae have been deteriorated/destroyed and now with tumors & I also have multiple lumbar fractures, crushed vertebrae. There are several of my destroyed vertebrae from the Cancer have created protrusions into my Spinal Cord and are mere fractions away from paralyzing my legs and or multiple areas of my body. My entire spinal column has collapsed from the Cancer having eaten through all of what comprises my vertebrae. THE X-RAY ABOVE (TOP) WAS TAKEN BACK IN MAY OF THIS YEAR 2018, THE VERTEBRAE DETERIORATED, NO DISC. SUPPORT/COLLAPSED, ETC.
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THIS X-RAY BELOW (BOTTOM) WAS TAKEN IN JUNE 2018, AND AS I WILL FURTHER EXPLAIN IN WHAT IS WRITTEN BELOW THE X-RAY. AS YOU CAN SEE HOW MY SPINE & VERTEBRAE ARE DETACHED FROM MY SPINAL CORD. MOST ALL VERTEBRAE ARE DETERIORATED, BECAME TUMORS (A VERTEBRAE COULD LOOK SOMEWHAT LIKE ABNORMAL VERTEBRAE
.ED SOME INTO A FATTY TISSUE (TUMORS), OTHERS ARE SO BRITTLE, AND SOME ARE MISSING ALL TOGETHER. THE SURGEONS IN TWO SURGERIES ATTEMPTED TO SECURE ALL OF MY FRACTURES AND RE-FRACTURES AS WELL AS REPAIRING VERTEBRAE AND OR TRYING TO RECREATE VERTEBRAE WHERE THERE ARE NONE.
THIS IS IN ADDITION TO ALL OF THE BONES IN MY BODY BEING ATTACKED, MY BONE MARROW AND OTHER DAMAGE TO MY BODY THAT IT IS ALLOT TO COVER EVERYTHING IN SUCH DETAIL;UT YOU CAN CERTAINLY GET THE IDEA BASED UPON THE DETAILS OF ONE SECTION, THE INTENSE PAIN IT CAUSES AND THEN MULTIPLIED TIMES MY WHOLE BODY, IT IS BRUTAL!!This X-RAY IS A MORE CURRENT IMAGE TAKEN IN JUNE 2018, THE DESCRIPTION BELOW PROVIDES AN IMAGE UNTO ITSELF WHEN YOU GAIN FURTHER UNDERSTANDING OF CERTAIN ITEMS YOU ARE SEEING. AS WELL AS CERTAIN CONDITIONS THE "SPINAL COLLAPSE" HAS CAUSED AND CERTAIN DANGERS THAT EXIST FROM THE EVENTS OCCURRENCE.
My diagnosis of Multiple Myeloma a Terminal Cancer had devastating damages to my body as I fight through this disease....
…. my spine taking into account my spinal collapse, the detachment of my spine from the body structure, destroyed discs, vertebrae that have been both damaged in that they are brittle or of a tumor in nature having the texture of jello. In either case, not bone! The other Vertebrae in the Cancers Damage have been completely destroyed and multiple shards of bone have punctured my spinal cord leaving these in positions just millimeters or less from causing paralysis. The loss of my motor functions already exists, numbness in legs comes and goes as does it with my arms, and sometimes its fingers or a hand or foot that I can not feel. I HAVE DAYS WHERE I HAVE WOKEN UP AND I HAVE HAD NO USE OF MY LEGS AT ALL! THANK GOD THESE OCCURRENCES HAVE BEEN INTERMITTENT AND HAVE SUBSIDED IN EACH CASE, SOME WITHIN 10 MINUTES AND SOME WITHIN AN HOUR OR MORE. THE OBVIOUS FEAR IS IT BEING PERMANENT.
The Spinal Surgeon's have done their best to secure these bone fragments by using a Cement/Epoxy that has been adhered to the Extruding part exposed piece of Vertebrae Bone. The same process and material has been used for securing the multiple spinal fractures I have. This has been done through several operations as I continue to Fracture my spine from its frailty, as well as repairing fractures that have re-fractured. There is also no way to remove those bone fragments from my spinal cord, as the operation was deemed to be something I would not be able to survive through.
Unlike someone who has fractures and would perhaps be under the care of a surgeon that would most likely use pins/screws and rods to secure and stabilize the spine. Unfortunately, my bones are of no use for that method, as there is nothing (no solid stable bone or Vertebrae) solid to screw into. Just my pain, pain and MORE pain, coupled by my broken ribs, my entire bodies bones degenerated and causing more pain.
All of what I described does not take into account all of my pre-existing lower back degeneration, disc problems, sciatic nerve damage, my neck of similar issues, although not to be compared to my lower back. You must realist that the cancer attacked by back from the chest downward. While my pre-existing conditions began in my lower back and worked upwards. The Cancer of course has the degenerative disc disease beat as far as permanent damage and total destruction in the shortest amount of time. It was like having Acid for blood. I must wear a double back supports waste to neck, a walker, knee braces, etc. This is all still a risk to break my back!!! I must have Bone Marrow and my case is so severe, I was advised by the medical team/Doctor's I will for sure need to Bone Marrow Transplants and I will be in the Hospital for 6 months.
I MUST HAVE THE HELP OF FRIENDS, RELATIVES, PEOPLE WHO CAN UNDERSTAND AND THAT HAVE EITHER LIVED THROUGH IT OR A FAMILY MEMBER HAS. PLEASE DONATE ANY AMOUNT YOU CAN AND PASS THE SITE ADDRESS LINK TO OTHERS WHO MAY DESIRE TO BE A CONTRIBUTOR. THIS IS A TIME SENSITIVE ISSUE AND THE AMOUNT THAT IS NEEDED TO HELP WITH MY PORTION OF THE EXPENSES IN NOMINAL IF EVERYONE WOULD JUST GIVE A SMALL AMOUNT, OBVIOUSLY IF YOU ARE IN A POSITION TO GIVE MORE GRACIOUSLY, PLEASE DO. THE IMPORTANT THING IS TO GIVE, AND EVEN MORE SO TO HELP ME TO HAVE OTHERS GIVE.
I have not had the help I thought or anticipated having during this crisis in my life and that unto itself is heartbreaking and painful. This issue has also caused delays in my working by myself to get the "go fund me" site up and running, as the window of time is closing in on me and the importance of having the bone marrow transplants will not just help extend my life, but protect, strengthen my immune system that have been so weak as to explain that I have had Pneumonia 3 times this past year, just as an indicator.
The Cancers devastating run, from the destruction of all my bone marrow to my bones themselves, heavily deteriorated is certain areas the cancer most commonly does its worst to and has, to my Skull (of which I already had an inoperable brain tumor, damaging my optic nerves and my pituitary gland), my ribs of which I have 2 broken from nothing more than laying on my stomach. To the spine, etc., etc. The Cancer also simultaneously is creating havoc with my blood. As besides the small percentage of people world wide who get this cancer (140k this yr.. 80k 12 month death rate, remainder at 24 months are to be dead, less 2 or 3%, which does not lead to a 36 month report from the leading cancer authorities that have published this information).
The additional factor and hazards for me is I HAVE A UNIQUE STRAIN OF THE CANCER THAT ONLY ONE IN TWO HUNDRED GET THAT GET MULTIPLE MYELOMA. THIS CAUSES THE OVER PRODUCTION OF PROTEIN/PLATELETS/DRONES THICKENING UP MY BLOOD! WHEN I WAS ADMITTED INTO THE HOSPITAL LAST YEAR MY LEVEL WAS AT 9,800 WHEREAS THE AVERAGE PERSON IS AT 300. THIS REQUIRES CONSTANT MAINTENANCE, MULTIPLE BLOOD TRANSFUSIONS, DIALYSIS / - CELL BREAKDOWN, AS ALL MY BLOOD IS REMOVED/FILTERED AND RE-FLOWS INTO MY BODY WHILE HOOKED UP TO THE MACHINE (described further and photos included within this STORY).
THE WORST OF THE WORST OF MULTIPLE MYELOMA, LURKS ABOVE ME LIKE A DARK OMINOUS CLOUD. THE PHASE THAT COMES NEXT IS THE CANCER BEGINS DESTROYING MY ORGANS, LIKE THE ACID HELL DEMON THAT IT IS. FIRST THE KIDNEYS AND THEREAFTER THERE IS NO POINT, LETS JUST SAY IT KEEPS GOING THROUGH MY ORGANS, BUT MOST DO NOT LIVE PAST THAT POINT!! WHICH IS WHY WE HAVE BEEN BEATING THE CANCER BACK WITH CHEMOTHERAPY AND OTHER TREATMENTS AND TRACKING MY CONDITIONS CONSTANTLY. THE BONE MARROW TRANSPLANTS HELP TO SET BACK THE CLOCK FROM WHAT IS THE FINAL STAGE OF MULTIPLE MYELOMA TO A LOWER STAGE IN THEORY.
With all of my pre-existing conditions as described in a list within MY STORY, from my leaking heart valve in my Mitral Valve Prolapse to having Arterial Fibrillation, Knees Bi Lateral conditions/surgeries, etc., etc. I could use all the support possible, physical, financial, emotional, spiritual, ++. So, please act and I thank you in advance for your time to read about what I am going through and for your care and consideration, which GOD WILLING I will be able to thank you for your Donation and Your Hard Work and Efforts in your Sending Out My Messages and Posts to your Friends on Facebook.
As well as Forwarding My Updates and your showing support using the "go fund me" messages icon "+" next to the Facebook and Twitter icons. to your own friend list and your directory of contacts. As it will send a pre-written message sharing about your support for my cause and providing the link to read my STORY, etc. The process works if you work it, but I need you!
When I am down for the count on certain days from being sick from Chemotherapy or my back pain, nerve damage, etc. I can not help to promote my own cause, I need help, you are part of that team!
I have had several operations to my spine for the described reasons and there is no solution or fixing all that has gone wrong with these injuries. The lumbar surgeons have installed a concrete material with several surgeries to replace vertebrae and repair my spinal fractures & will continue to do more of them as the treatments of chemotherapy, The continued Chemotherapy I go to twice per week and on one of the two days I go I receive Chemotherapy Treatment(s) for over 3 hours. I have been receiving the Chemotherapy for 12 months since December 2017 and I will continue to receive this treatment until such time that I pass away. I have had an IV Port installed surgically that allows my treatments to be plugged into and feeds right into my heart.
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_______________________________________________________________________POWER PORT - WEB-SITE LINK, POWER PORT INFORMATION (Double Click This Description Line To Connect To The Web Site Location).
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As the strength of the Cancer would increase in a great way if the Cancer is not being continually Treated the aggressiveness and strength of the Cancer is always known for coming back after it is fought down in a stronger way.
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I BEGAN RECEIVING CHEMOTHERAPY TREATMENTS WHILE I WAS IN THE HOSPITAL FOR 1 MONTH DURING DECEMBER, MY ONCOLOGIST AND TEAM BEGAN MY OUTPATIENT CHEMOTHERAPY TREATMENTS WHEN I WAS RELEASED FROM THE HOSPITAL AND I HAVE BEEN RECEIVING CHEMOTHERAPY TWICE PER WEEK FOR THE PAST 10 MONTHS!
JUST TO PROVIDE YOU WITH AN IDEA OF WHAT THAT CHEMOTHERAPY TREATMENTS QUANTITY REPRESENTS THAT I DESCRIBED PREVIOUSLY, THE ABOVE ARE SOME OF MY MEDICAL WRIST BANDS WHEN I WAS ADMITTED FOR CHEMOTHERAPY TWICE PER WEEK SINCE THE END OF DECEMBER 2017 UNTIL NOW. THESE ARE JUST SOME OF MY MEDICAL WRIST BANDS FROM THE JANUARY OF THIS YEAR FOR VARIOUS MRI'S, CAT SCANS, PET SCANS, X-RAYS, MEDICAL PROCEDURES, ETC.
Some of the next steps that help sustain my life will be radiation treatments, bone marrow and stem cell replacement. The Stem Cell and Bone Marrow will require my needing funding and the reason for asking for financial help. My Bone Marrow Transplant and Stem Cell Treatments are going to require $70,000 and additional insulary expenses that I need to complete the process, providing all things go well, which they usually do not. These are in addition to other medical costs that have been increasing and overwhelming for me and can no longer be sustained. So please help in any way you can, as it is greatly appreciated.
I am 52 years old male with three children living in Palm City, Florida and I have been suffering with PRE-EXISTING CONDITIONS even before having received my Diagnosis of TERMINAL CANCER debilitating health disorders and conditions, inflicted with constant pain with all of the diagnosis for these in my near future is worsening. My conditions consist of having an Inoperable Brain TuMor which will eventually have a loss of vision as the nerves are entwined with the Brain Tumor, which is combined with horrific migraine headaches, a Leaking Heart Valve and Arterial Fibrillation, Permanent Nerve Damage and 5 Degenerated Discs in both my Lumbar and Cervical area.
My Sciatic Nerve and other conditions leave me with a constant loss of use of my Legs, numbing and loss of use of my arms and hands, which at various times can happen without warning or I wake up without the use of my limbs and have incontinence with these same conditions. (SWOLLEN... I HAVE THIS OCCUR REGULARLY IN BOTH MY FEET, KNEES, JOINTS, BURNING, THROBBING, STABBING PAIN).
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MY DISORDERS ARE LISTED BELOW AND I AM LIVING ON 40 PRESCRIPTION MEDICATIONS TO STAY ALIVE AND TO HAVE SOME FORM OF FUNCTIONALITY, THIS CONSISTS OF OVER 70 PILLS PLUS INJECTIONS TAKEN DAILY....Breakfast!! Yum!! These are not ALL of my Medications, however, these are the bulk of them that I take daily....
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>>>> Clifford Wagner Diagnosis Summary Information 10/15/18. <<<<
*Terminal Cancer; Multiple Myeloma (Not having achieved remission),
*Thoracic Compression Multiple Fractures, Closed,
*Collapsed Spine,
*Lumbar Radiculitis,
*Lumbar Compression Fractures, Seuela,
*New Additional Acute Compression Fractures of T10, T11 Vertebral Bodies. *Approximately 25-30% Degenerative Loss of Height Consistent Within Multilevel Lumbar and Thoracic Spine In The Vertebral Bodies (Measured Approximately 7”Combined In Height).
*Compression Fracture of Body of Thoracic Vertebra,
*Chronic Midline Lower Back Pain With Bilateral Sciatica,
*Hyperlipidemia.
*Left Foot Drop,
*Lumbar Disc Herniation With Radiculopathy,
*Chronic Pain Syndrome,
*Chronic Pan-sinusitis,
*Lytic Bone Lesions,
*Hyponatremia,
*Serum Viscosity Increased,
*Long Term Current Use of Opiate Analgesic,
*Pneumonia of Left Lung Due To Infectious Organism,
*Depression,
*Anxiety,
*Agoraphobia,
*Post-Traumatic Stress Disorder,
*Adrenal Gland Depletion/Exhaustion,
*Mitrolvalve Prolapse,
*Mitral Regurgitation,
*Atrial Fibrillation,
*Sciatica (Right Leg and Foot Numbness/Pain),
*Degenerative Disc Disease (degeneration of lumbar or lumbosacral intervertebral disc),
*Displaced Discs on Multiple Levels with Annular Tears and Protrusions,
*Degenerative Disc Disease (Neck), Neck Pain, Nerve Damage-Right Arm Numbness,
*Myalgia and Myositis,
*Lumbago,
*Unspecified Drug Dependence,
*Torn Meniscus Left and Right Knee's,
*Torn ACL Right Knee,
*Severe Bilateral Chonromalacia in the Patello Joints,
*Bilateral Bursitis,
*Bilateral Tendinitis,
*Bilateral Osteoarthritis,
*Bilateral Osteoarthritis in both hands,
*TMJ (stands for temporomandibular joint),
*Sleeping Disorder, Sleep Apnea,
*Acid Re-flux,
*Sinus/Allergy Problems,
*Tested Low T/DHEA,
*Pituitary Gland Treatment/MRI Semi-Annual Monitored,
*Brain Tumor / Pituitary Gland / MRI-Brain Scan Semi-Annual Monitored,
*Migraine Headaches,
*Low Testosterone,
*Leg & Arm Numbness, Loss of Use, Nerve Damage,
*Diabetes,
*Urinary Incontinence,
*Erectile Dysfunction,
*Tinnitus,
+Review side effects from Medications.
**Note: (Lumbar Discs Are Inoperable Per Dr. Afshar - Neurologist/Surgeon), Use of walker, cane, knee braces, portable tens unit, and lumbar brace. In addition to medications and medical treatments.
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The cost for my Medical Insurance, Prescription Coverage and Co-Payments, Additional Medical Care NOT Covered by insurance and the associated expenses are so high that I have exhausted all of my resources and assets that I have saved over my lifetime of working at which time I had my own business. When I began to take ill 14 years ago and my health has gradually worsened. As well as my need not to mention the I have supported and raised 3 children now in college, and supported my now ex-wife. As well as the general expenses of living, repairing things around the home, HEALTH INSURANCE, PHARMACY/MED. INSURANCE, CO-PAYMENTS, MEDICATIONS NOT COVERED, CO-PAYMENTS, BOTH MEDICAL AND PHARMACEUTICAL, ETC.
It would be important to understand that I live on Social Security Disability ($1,300 per month) and that's it. So, its not hard to figure out with well over a million dollars in medical insurance billing from my health conditions, treatments, hospital, etc. This again I mention to illustrate that this medical insurance claim figure example is to provide you with an idea of what I had to pay for, my expenses and exposure and this is going to be nothing in comparison to being in the hospital for 3 months and getting a bone marrow transplant. Which is why I have an enormous need for financial assistance and you can make a difference, please help.
MY "BIG RIG" ... CRUISING WITH MY WALKER, IT IS IMPORTANT TO USE THOUGH, OR THE ALTERNATIVE CAN BE DANGEROUS.... SEE NEXT PHOTO....
** Value Equation: "NO WALKER USED" = "BLACK AND BLUE!!"
I WAS GETTING OUT OF MY JEEP AND DID NOT WAIT TO GET MY WALKER FROM MY SON WHO WAS DRIVING ME, AND I USUALLY WAIT UNTIL HE BRINGS IT TO ME ON THE PASSENGER SIDE OF THE CAR, SO WHEN I GET OUT, I AM USING IT FOR STABILITY WHEN JUST STANDING. I DID NOT THIS TIME .... I WILL NOT DO THAT AGAIN!!!IT LOOKED WORSE THAN IT FELT, BUT THAN AGAIN, IN THE SCOPE OF MY INJURIES, THIS DID NOT REGISTER ON THE RADAR!! I WAS VERY LUCKY FOR MY "CAT LIKE REFLEXES" LOL. AS I GRABBED ONTO THE SIDE OF THE CAR AND DECREASED WHAT WOULD HAVE BEEN A MUCH WORSE DISASTER, THIS IS ESPECIALLY THE CASE WITH MY BONES BEING IN SUCH A FRAGILE STATE, I COULD HAVE EASILY BROKEN ONE IF NOT SEVERAL BONES BASED UPON MY CONDITIONS!!
However, nothing prepared me for my next waive of bad health... Terminal Cancer, Multiple Myeloma, followed by the Cancers Devastating Path, as it sweeps through my body within my blood, acting as if it were Acid. Unfortunately, during the years I suffered with pain for various conditions, the worst of which early on in years was my lower back pain that inflicted enough pain by itself, but when combined with my Bi-Lateral Torn/Detached Meniscus and Bi-Lateral Detached ACL's, this in conjunction with other knee issues. I have had multiple Knee Operations and various procedures, including but not limited to Bi-Lateral Quarterly Knee Injections, combined with Special Injections to help with development and growth that are done in a Series of 5 injections per knee (one per week, for five weeks). These are only allowed to be done as a series Twice Per Year.
With all of this and medications, my knees just give out randomly and if I have no support I will go down!! I have to use a Walker and back and knee braces to get around. If I don't use the Medical Devices I will have risk in the area falling, breaking my bones, fractures, etc. The doctors and surgeons advised me that all I have to do to fracture my spine (along with the 9 that I have already) is to just stand in place "that's it", even with my full upper body brace and supports, which was a step worse than months earlier being told that I could be wearing my braces, sitting in a chair, turn the wrong way and fracture my spine. Its all bad, the current events worse, but its all bad.
"KOBI" HAS BEEN MY "SERVICE DOG" AND I DO NOT KNOW WHAT i WOULD DO WITHOUT HIM, HE GOES EVERYWHERE I GO!!"KOBI" The Greatest Dog, Friend, and Service Dog a Person Could Ever Ask For!!!
I see a doctor or specialist or have a treatment or testing CHEMOTHERAPY TWICE PER WEEK, (PET - SCANS, X-RAYS (HEAD TO TOE), CAT - SCANS, MRI-ENTIRE SPINE, MRI-RIBS,KNEES,(IN THE HOSPITAL THEY SCANNED MY ENTIRE BODY), MRI-Brain, Blood Work WEEKLY, Echo-cardiogram, Decompression Treatments, Epidural Injections, Knee Injections, Etc.) from MY ONCOLOGISTS, Neurologists Specializing in Brain Surgeries, Heart Specialists, Orthopedic, and So On, and So On, as I have over 25 Doctors and Specialists that I see on a regular basis.
These visits occur almost EVERY day of the week, some days I can see up to three medical practitioners, some days just one, and I do have days that I must CANCEL Appointments due to my NOT being able to feel my legs or arms when I awaken from sleep and cannot get out of bed, until such time that the condition lapses and sometimes and as time has gone on, this has been happening more often and the time frame of my inability to have use of my extremities is getting longer and longer, they are just numb dead limbs and it is extremely upsetting and frightening!! To say the least.
This is Depressing to say the least, especially when my health just keeps getting worse and at best the Doctors and Specialists are trying to slow down the debilitating process and just control the high levels of pain I constantly experience as my body is degrading.
Which is difficult for a person who spent his life always working very hard, building multiple businesses, working with and being on the Board of Directors for 5 Non-Profit Organizations, and well and by far having a type "A" personality and always building, doing and being very productive.
Just one example in my financial concerns, I spend over $1,000 per month just in Medication Co-Payments (after insurance for the 40+ prescriptions I fill), as well as the continued expenses and increases for Health Care Insurance, and the Living Expenses. Which I am NOW AT THE POINT IN WHICH I AM LOSING MY HOME (which is VERY MODEST accommodations), I CAN NO LONGER PAY THE TAXES AND FEES AND AFFORD THE INSURANCE AND THE GENERAL COSTS TO LIVE....
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***Which by the way ... Reminds me that my ANNUAL MEDICATION PILL BOTTLE/CONTAINER, BASICALLY ALL MY MEDICINE THAT'S FROM THE PHARMACY THAT HAS A PHARMACY LABEL ON IT ... THIS IS A YEARS WORTH, DON'T ASK ME WHY I SAVED THEM, I JUST STARTED THROWING THEM IN A LARGE GARBAGE BAG NEXT TO MY BED ... THE BAG GOT FILLED AND HERE I AM TAKING A PICTURE ... EXCEPT FOR THE FACT I DUMPED THEM OUT OF THE BAG CAUSING EXTRA WORK FOR MYSELF, BUT I WAS CURIOUS TO SEE WHAT A YEARS WORTH OF MEDICATIONS WOULD LOOK LIKE, AND NOW YOU KNOW TOO (F/Y/I ... My "Mango" (the most - curious cat in the world) was in no danger for him or anyone or anything, lol, all the bottles were previously double checked that they were empty, then dumped on the floor, a quick few photos and swept back into the garbage bag, carpet vacuumed, and good to go! "SAFETY FIRST!!".Some Medications from my annual purge of empty pill bottles and containers are not shown here. I am taking my 45 prescription medications in addition to my Chemotherapy treatments and the additional medications I am given through my I.V. Port or as Injections at a Medical Facility, Treatment Center or Hospital and therefore I do not receive a container to dispose of. Regardless, the quantity of medications I have taken this past year for my survival is quite staggering, especially when I see them like this versus just hearing the words as the the number "45+ Prescriptions Filled Per Month".
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Which by the way after a Lifetime of my Donating Money, Volunteering My Time to so many Charities and Non-Profit Organizations and helping so many others in need when I was asked to do so and over my life I did so with a cheerful heart and with No thought of reciprocation or return. However, I was surprised and saddened that when I asked for some small amount of help from those I gave so much; I was shown no compassion or care.
All of this was and is just more that degrades my spirit and hope, as although I do get some financial aid through the government, it just is nowhere near enough.
All of this has been very difficult to deal with and especially this year most of all, with the Loss of my Father who died in January of 2017 at the age of 90 and we were Very Close, he was by far my best friend and this circumstance was made even more difficult when my Mother of 86 years old was left with limited resources and a great many things that needed to be learned that my father always did. I also attempted to reduce my mothers expenses by my doing many home repairs and also focusing on her expenses that I was able to reduce through reducing costs.
My children do the best they can do to help support themselves and to contribute (this in all ways, financially, physically, emotionally, etc.), but with them also being in school and working at the same time, it's nowhere near what is needed to help me as I LIVE OUT THE LAST CHAPTER OF MY LIFE!!
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I can only hope that when I discovered and heard of this resource that someone out there or many out there reading this can show me that there is hope and that I can continue to receive the medical care I need and the appropriate medications, injections, surgeries, and procedures that will allow for some pain relief as I conditions continue to degrade. I hope, I pray, I am trying to have faith that I can keep my home and continue to pay for the expenses.
I have had help from Hospice and Palliative Care and the Nurses and Social Workers that have come to my home regularly is greatly appreciated. Unfortunately, the Health Care Provider I was working with for these services and programs changed their companies priorities and deleted the division of Nurses that were providing my Palliative Care. I have since replaced some services and i am hoping that with Donors help I can apply a portion to my Medical needs while I am at home. There are other programs through charitable organizations I am perusing, I certainly hope some of these things come through.
I have allocated for my fundraising the amount of money that it costs for my Medical Care / Insurance /- Home expenses for the next Two Years, which would be a realistic time frame for as long as I would be with us and at which time all of the medical expenses for me would then end. However, this being said, there is no way to account for the additional expenses that can arise from my having health complications or an acceleration of the Cancers progression. This is especially the case with my most recent visit to Mayo Clinic in Jacksonville Florida for a consultation for a Bone Marrow Transplant. This is after having multiple Medical Opinions from such facilities as Cleveland Clinic and Moffitt.
The scenario that has been presented to me from Mayo Clinic is to have a Bone Marrow Transplant in order to sustain or potentially extend my life. The initial part of the process involves a Bone Marrow Test, followed by my having bone marrow removed during a week’s stay at Mayo Clinic Hospital from me in order to cultivate and develop Bone Marrow with Stem Cells over the course of several months. At which time I would return to the Hospital for what was described to me as the most intense and strongest and or powerful Radiation and Chemotherapy I could possibly withstand without having permanent injury or to cause my death.
I have been treated for 12 months with Chemotherapy, twice a week, and every week! I know what the results and effects can be from having these treatments. So, to know that I will need to experience these treatments at a much stronger level sounds frightening. As I was guaranteed by the Physician that I will lose my hair although I was lucky to have hair from my current Chemotherapy. As well as the Physician indicated that the Strength of the Radiation and Chemotherapy will at a level that will multiply any negative effects I had previously. The purpose for such an intense treatment period is to reduce the Cancer level within my body prior to Bone Marrow Transplant.
The time period that I will be in the hospital for the Bone Marrow Transplant will be about 3 months, baring no unforeseen complications. There is an obvious danger and concern for having this process completed. As it will also involve MULTIPLE BLOOD TRANSFUSIONS and MULTIPLE DIALYSIS TREATMENTS (must remove excess platelets within my blood, prior to having the Bone Marrow Transplant). This treatment with the use of this machine and connected to my major artery removes all the blood in my body and separates and breaks down the blood for the purpose of the excess platelets. Then of course with these described medical procedures completed satisfactorily and all of my blood work being at the appropriate levels. My other Doctors and Specialists signing off and approving moving forward at that time, an example of this would be my Cardiologist would need to make sure that my Heart and my Mitral Valve Prolapse and Arterial Fibrillation are not of concern for the surgery. Then the Bone Marrow Transplant will move forward.
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* THE PROVIDED DESCRIPTIONS BELOW CAN BE CLICKED ON TO BRING YOU TO THE ASSOCIATED WEB SITE AND WILL CONTAIN A VAST AMOUNT OF FACTS AND INFORMATION REGARDING BONE MARROW TRANSPLANTS...
MAYO CLINIC - BONE MARROW INFORMATION
MEDLINE PLUS - BONE MARROW INFORMATION
HEALTHLINE - BONE MARROW TRANSPLANT INFORMATION
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The importance of all of this, as well as other treatments, procedures and medications taken prior to the New Bone Marrow Transplant is to create the best possible conditions for the Bone Marrow Implant itself. The NEW Bone Marrow Implanted in my body, either by its Acceptance or Rejection will determine the need for additional and potential future treatments or the possible dangers are of concern due to my VERY LOW Immune System and vulnerability and or susceptibility to any germs, or viruses, etc.
This including the INCREASE in Cancer Cells, as the lack of ANY Bone Marrow, BOTH Destroyed from the INTENSE CHEMOTHERAPY AND RADIATION TREATMENTS I spoke of that will occur at the beginning of my stay in the Hospital for this process. As an example I had Pneumonia 3 times within the 9 months I have been out of the Hospital. The Concern is that under the conditions I am describing, catching a virus during that time could be fatal. So, with all that said, I am worried!!
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*** MY BIO/HISTORY/RESUME ...
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I appreciate your care and consideration if you have read through this and if you have had the ability to donate to my medical needs and living. I also need some immediate home repairs that need doing and I also no longer could do many of these things myself for obvious reasons, although I do try and do as much as I can.
* If you desire to do additional research regarding my Cancer Multiple Myeloma, the below Web Site Links are available to you for that purpose, just click on the respective title to be transferred to the Web Site.
Mayo Clinic - Multiple Myeloma Additional Education
Mayo Clinic - Bone Marrow Transplant Additional Education
Web MD - Additional Education Multiple Myeloma
Medicine Net - Multiple Myeloma Additional Education
Wikipedia - Multiple Myeloma Additional Education
Health Line - Multiple Myeloma Additional Education
I thank you greatly on behalf of my three children and myself for your taking the time to read my STORY and to learn about my Cancer Multiple Myeloma. With your help and your ability to connect to others within your network of friends, family and business acquaintances. Your ability to raise funds and to Increase Donations. This web-site has the tools to market to your Contacts with the use of the section on messages, as Facebook and Twitter and "+" icon which represents your phones use to down load contact and have them sent a text or email, etc. with a pre-printed message to please help, as well as it reflects your support of the Charity and the Link to read my STORY. A valuable tool as well as forwarding my posts to either Facebook, Go Fund Me, or Others, that your own personal contacts can not see, as I would suggest sending it along to help promote the benefit of extending my life!!!
Take Care and Again Thank You!
Clifford J. Wagner.