Baby Gannon joined our family two weeks ago and thus far has spent his entire life in NICU. Our little guy continues to improve daily with the help of his medical team and the love of his family and friends. Originally we had planned to move back to Texas by the end of this year to be closer to family support. Little did we know that what was once a smooth path forward would suddenly become an overwhelming maze of medical needs and financial challenges.
We have received test results and Gannon was born with Prader Willi Syndrome. Daily we are becoming more informed about what this syndrome is about. We do know for the immediate future he will require full time care once home. He may undergo surgery to have a gastrostomy tube inserted so we can feed him when home .We have a long road ahead of us and a lot of questions yet to be answered. We are already so in love with him and can't wait to bring him home. He has taught us so much already.
We need to get home to Texas as soon as he can travel where we can live with family while we regroup, recover and discover our new path forward.
Thank you for all your love and support.