Sebastian Strong

My husband and I were blessed with our second child November 23rd, 2015. We had a seemingly normal pregnancy, and delivery. Sebastian was born at 39 weeks gestation and seemed to be healthy. He had trouble keeping weight on, trouble feeding, GERD, and a milk protein allergy. These were not foreign to us because our first son Tinsley also had the same issue's. Sebastian differed from Tinsley though because once we switched him to prescription grade formula, (neocate) and prev-acid for his GERD, his symptoms weren't decreasing, they were in fact becoming worse. He began having cyanotic episodes, seizure like activity, high pitched noisey breathing, trouble evacuating his bowels, developmental delays, increased head growth, sleep apnea, and other things babies should not be dealing with. So far we have had a few hospital stays, we are constantly at the doctor, and specialists, driving all over town to make multiple appointments per day. Currently he has confirmed diagnosis of:
Sleep apnea
Observed seizure-like activity
Gastroesophageal reflux disease
Milk protein allergy
Anal stenosis
Congenital tracheomalacia
Congenital laryngomalacia
Oropharyngeal dysphagia
Dysphagia
Macrocephaly
Aspiration into respiratory tract
Feeding difficulties.
We are still on the long journey of discovering his diagnosis, and fighting to find the best medical team for him. This page is designed to keep everyone updated, and hopefully help us to gain support, and knowledge along the way. Please like, and share our page. Also, please include the hashtag #sebastianstrong to spread awareness. We are selling shirts as a fundraiser, please contact me if you are interested in purchasing one. Thanks for all of the overflowing love, prayers, and support.

-The Lanzer Family.

I will try to update daily. 

www.facebook.com/besebastianstrong