Bennie was born early due to pregnancy complications & has had an uphill battle ever since. He was born not breathing & was very sick & had to be placed on a ventilator. After seeing numerous doctors & specialists, he was diagnosed with Chromosome 14Q Deletion. Bennie's family quickly found out that this meant he was missing an entire piece of a chromosome, which brought with it many sub-diagnoses.
Over the past five years, Bennie has seen about 20 specialists & had over a dozen surgeries. He has lung disease, brain lung thyroid syndrome, chorea, brain damage, scoliosis & many other conditions that have rendered him non-verbal with a slim chance of ever walking or talking.
Bennie lives in Madison with his mom & dad, Mary & Rick, and siblings Samuel & Samantha. He also has adult siblings, Andrew & Allison who are going to college in the Madison area.
Please join us on Saturday, August 12, for the 5K & softball game. Together, we can make a difference for Bennie & his family!!