
Help Baby Violet
All about our sweet pea Violet ,
As everyone knows Dave and I were very excited when we found out i was pregnant and as time grew we found we would be having a baby GIRL <3 , as my pregnancy went on I grew sicker and sicker every day and was having weekly obstertrician appointments to make sure our angel was okay . at 34 weeks pregnant my doctor had sent me to mount sinai hospital high risk pregnancy center because something was "abnormal" in a growth ultrasound and that was the day our whole world came crashing down on us when we discovered Violet has a congenital heart defect called Hypoplastic Aortic Arch as well as a VSD & a ASD (holes in the heart) And that she would need to under go open heart surgery at birth .
so 2 weeks went by after our discovery and i went into labour and had to have a emergency c-section because she needed to come out and as soon as she was born she was put on breathing support & all sorts of medications to prepare her for her surgery she went into the OR at just 3 days old to have her arch repaired and the VSD closed . We had thought that the worst was over but it wasnt as our angel grew bigger and she was intubated she had developed a few other health issues such as NEC , gallstones, obstructed airways & vocal chord paralasys & is now going to the OR next week to get a Tracheostomy due to obstructed airways & vocal chord paralasys & now will need long term care provided by myself and home nurses (when she is able to come home) and is on a special diet as she aspirates on a regular basis , she has never left a hospital & im by her side every step of the way , this has honestly been the worst thing Myself , her daddy & big brothers have ever had to go through . I wasnt going to do this , but it would mean the world to us if we could please get help . it has been a very long road , and still a long time coming . I cannot work anymore as My baby needs me everyday , this will help her to pay for transportation back and forth to all of her special appointments , with her special formula (we cant even buy it in the grocerie stores) , get her all of the medical supplies and equipment to care properly for her trach , aswell as some of her medications this would just help take away some of the stress's , it will just get her everything she needs & wants to be happy & healthy !! Our baby girl deserves it <3
Thank you so much for taking your time to hear our story ,
Violet , Rebecca (Mom) , Dave(Dad) & Big brothers Travis & caleb ! <3 <3