Baby Johnny Ramos Fund
Donation protected
My name is Suzanne Glassman and I am a friend of Johnny and Edwina Ramos.
It is my heart desire to share with you the story of their sweet baby Johnny on his journey to be healed from his cancer treatments.
I would love to request any support you can gift the Ramos family. Spiritually, Financially, Emotionally or Physically.
It has been a bit of a struggle to convince Johnny and Edwina to agree to the Go Fund Me fundraiser. I have watched them for years give to so many people. I asked them why it was easier for them to give then to receive? They simply felt uncomfortable to ask even though baby Johnny's treatments have truly dented their finances as it would any of us. They have given much to so many and now I believe it is their turn to be supported!
Listed below is the story of Baby Johnny. I asked Edwina to write their testimony below. Please feel free to contact Edwina or Johnny through Go Fund me if you would like to be anonymous or contact them directly if you have any questions. Thank you for taking the time to read this and help.
Delight Yourself In the Lord & he will give you the desires of our heart. Pslam 37:4
Baby Johnny's Testimony
What our pediatric physician thought was the stomach flu, turned out not to be. On May 4, 2017, our little guy who was 7 years old at the time, had a CT scan done that showed a mass the size of 2 golf balls on the back of his cerebellum. Later the pathology report had diagnosed the mass as Medulloblastoma, a fancy name for brain tumor.
Stanford - Lucile Packard Children's Hospital had accepted our sons case. He was transported the same night and admitted into PICU. After waiting for 24 hours, we finally met with the Primary Neurosurgeon Doctor and his assistant. They explained the next steps and that our little guy was scheduled for brain surgery the next morning. They reviewed his MRI images with us and shared all the side affects that normally takes place after surgery such as; crossed eyes, not able to balance, walk, or speak. They prepared us with warning that our son wouldn't be recognizable after his surgery because he is face down for hours and the fluid would make his face puffy. The doctor had hopes that they would be able to remove maybe 80% of tumor and that surgery would take all day.
The next morning, we prayed with baby Johnny before he left for surgery. He was led to Lord and received salvation. The peace that surpasses all understanding was flowing upon us. We knew God was in total control and all was well. After surgery, everything we had believed for and declared had come to pass. Baby Johnny had no side affects! No puffy or swelling in his face! God had removed that tumor! He was walking and eating by the 3rd day after his surgery and discharged on the 8th day.
A month later, baby Johnny was vomiting and not feeling well. We took him into the ER at Stanford, where they had done an MRI. The MRI showed his Cerebrospinal fluid had backed up again. He was sent back into operating room within a few hours for an emergency surgery to have a VP Shunt implanted to permanently correct his cerebrospinal fluid circulation. The VP Shunt will be something he will have for the rest of his life. His Primary Neurosurgeon Doctor spoke to us after the surgery. He spoke of how children get admitted when parents see the signs of a fever or a cold. By then, children would have an infection within their brain. TYJ, for catching it in time and baby Johnny had no infection or complications!
Since then, he has completed all 30 rounds of radiation treatments. He had no delays! No blood transfusions! No cold or fevers! He woke up at 5:30am for 6 weeks never complained once about going to radiation treatment. His MRI's showed no signs of growth or tumor cells where the primary tumor was removed. God healed him completely!
Baby Johnny still has a journey to finish for his season. He is now under going chemotherapy treatment once a month as an inpatient for a few days. His last treatment will be February of 2018. He is also being home schooled till next year. Johnny and I are both taking turns caring for him while he is out of school and trying to balance our careers, family, and our home as well.
Baby Johnny's season has definitely been an eye opener for our family. We have seen it on social media or on the News but never would imagine we could be that family. We share our testimony with hope that it'll give others strength, encouragement, but most of all FAITH to always fight the good fight. GOD is Great and He is Good!!
We are forever grateful for the amazing people GOD has blessed us with throughout our season. Which includes all the prayers, love, and support sent our way.
Be blessed,
Johnny, Edwina, Baby Johnny, & Family!
"The LORD will fight for you; you need only to be still.” Exodus 14:14
It is my heart desire to share with you the story of their sweet baby Johnny on his journey to be healed from his cancer treatments.
I would love to request any support you can gift the Ramos family. Spiritually, Financially, Emotionally or Physically.
It has been a bit of a struggle to convince Johnny and Edwina to agree to the Go Fund Me fundraiser. I have watched them for years give to so many people. I asked them why it was easier for them to give then to receive? They simply felt uncomfortable to ask even though baby Johnny's treatments have truly dented their finances as it would any of us. They have given much to so many and now I believe it is their turn to be supported!
Listed below is the story of Baby Johnny. I asked Edwina to write their testimony below. Please feel free to contact Edwina or Johnny through Go Fund me if you would like to be anonymous or contact them directly if you have any questions. Thank you for taking the time to read this and help.
Delight Yourself In the Lord & he will give you the desires of our heart. Pslam 37:4
Baby Johnny's Testimony
What our pediatric physician thought was the stomach flu, turned out not to be. On May 4, 2017, our little guy who was 7 years old at the time, had a CT scan done that showed a mass the size of 2 golf balls on the back of his cerebellum. Later the pathology report had diagnosed the mass as Medulloblastoma, a fancy name for brain tumor.
Stanford - Lucile Packard Children's Hospital had accepted our sons case. He was transported the same night and admitted into PICU. After waiting for 24 hours, we finally met with the Primary Neurosurgeon Doctor and his assistant. They explained the next steps and that our little guy was scheduled for brain surgery the next morning. They reviewed his MRI images with us and shared all the side affects that normally takes place after surgery such as; crossed eyes, not able to balance, walk, or speak. They prepared us with warning that our son wouldn't be recognizable after his surgery because he is face down for hours and the fluid would make his face puffy. The doctor had hopes that they would be able to remove maybe 80% of tumor and that surgery would take all day.
The next morning, we prayed with baby Johnny before he left for surgery. He was led to Lord and received salvation. The peace that surpasses all understanding was flowing upon us. We knew God was in total control and all was well. After surgery, everything we had believed for and declared had come to pass. Baby Johnny had no side affects! No puffy or swelling in his face! God had removed that tumor! He was walking and eating by the 3rd day after his surgery and discharged on the 8th day.
A month later, baby Johnny was vomiting and not feeling well. We took him into the ER at Stanford, where they had done an MRI. The MRI showed his Cerebrospinal fluid had backed up again. He was sent back into operating room within a few hours for an emergency surgery to have a VP Shunt implanted to permanently correct his cerebrospinal fluid circulation. The VP Shunt will be something he will have for the rest of his life. His Primary Neurosurgeon Doctor spoke to us after the surgery. He spoke of how children get admitted when parents see the signs of a fever or a cold. By then, children would have an infection within their brain. TYJ, for catching it in time and baby Johnny had no infection or complications!
Since then, he has completed all 30 rounds of radiation treatments. He had no delays! No blood transfusions! No cold or fevers! He woke up at 5:30am for 6 weeks never complained once about going to radiation treatment. His MRI's showed no signs of growth or tumor cells where the primary tumor was removed. God healed him completely!
Baby Johnny still has a journey to finish for his season. He is now under going chemotherapy treatment once a month as an inpatient for a few days. His last treatment will be February of 2018. He is also being home schooled till next year. Johnny and I are both taking turns caring for him while he is out of school and trying to balance our careers, family, and our home as well.
Baby Johnny's season has definitely been an eye opener for our family. We have seen it on social media or on the News but never would imagine we could be that family. We share our testimony with hope that it'll give others strength, encouragement, but most of all FAITH to always fight the good fight. GOD is Great and He is Good!!
We are forever grateful for the amazing people GOD has blessed us with throughout our season. Which includes all the prayers, love, and support sent our way.
Be blessed,
Johnny, Edwina, Baby Johnny, & Family!
"The LORD will fight for you; you need only to be still.” Exodus 14:14
Organizer and beneficiary
Suzanne Ewing Glassman
Organizer
Morgan Hill, CA
Edwina (Dabo) Apolo-Ramos
Beneficiary