Baby Rodney's Medical Expenses

In  late March my sister and her husband recieved crushing news that their unborn baby boy has Jacobsen Syndrome, which is a deletion of the 11th Chromosome.  This syndrome is very rare and only 200 confirmed cases have ever been reported, and the level of disablilties and abnormalities are very wide spread.  They range from severe to managable and everything in between.
 Unfortunately with the rarity of this syndrome there definitely are many of unknowns.  Immediatly following the diagnosis Robert and Jenny were put into contact with Children's Hospital to recieve further testing and scans of the baby. 
They have since had multiple ultrasounds, mri, and an echocardiogram of Baby Rodney to deteremine what conditions he may have, and to better equip the doctors once he is born.  With all of these doctors visits and hospital visits so far the medical bills have already started to pour in.  We do know that surgery following birth is imminent.  What is unknown is how many surgeries and any other complications following birth.
Any donations will be greatly appreciated to help this wonderful family who has been given this miracle baby.