Azri Was born at 31 weeks and 3 days she is two months and hasn’t seen home yet and won’t till around 6 months . A new born screening showed she had an auto immune disorder called SCIDS . SCIDS is a rare only effecting  1 in 50,000 and most patients do not make it past 2 years old if left untreated. Because it’s so rare we had to leave our home and our 2 year old son to go to cooks children’s hospital in Fort Worth txs where she will undergo a bone marrow transplant. She has to take chemo , and have 3 ivs placed in her heart , and go through plenty of blood transfusions . Azri has to take multiple variety of medications just to prevent side effects from her other medications even pain medicines to ease her pain from her Ivs in her chest .Due to chemo we are also left with the decision of her having one of her ovaries taken out or have a low chance of having children. being 18 and 17 it’s hard having to drop everything including our jobs , and having to effect our family at homes life. 

Being 6 hours away from home, having to stop working, and having our car start messing up has put a hard stress on our family . We are currently trying to save for a new car and support our family back home anything even to take the time to share will be appreciated.