Angel Chew was born 12 years ago with Beal’s syndrome, a rare genetic disease that affects connective tissue. As part of this genetic disorder, Angel suffers from kyphoscoliosis, osteoporosis, bone contractures, restrictive lung disease, gastroparesis, epilepsy, delayed growth, and chronic pain. Over the past 12 years, Angel has traveled back and forth between Louisville and Indianapolis for treatments including over 30 surgeries. Despite the bumpy road, Angel’s family has been able to maintain a sense of normalcy and financial stability until now.
After Angel became ill and hospitalized again on August 24th, doctors found blockages in her GI tract that are causing her to aspirate while she sleeps. In addition, her spinal curvature has become severely worse and is crushing her right lung. Angel is now requiring feedings through a tube during the day, and the doctor is only allowing her to eat a revised diet by mouth, in order to decrease the risk of further aspiration. She is unable to attend school so she is doing home bound studies. Her family is attempting to set up homecare for her at this time. The doctors’ focus at this point is to increase her strength and respiratory status in preparation for her upcoming major surgeries.
As you can imagine, Angel’s mother, Ebony, has had to take a lot of time off work recently to be with Angel during her hospital stay and doctor’s appointments. This is causing overwhelming financial hardship and is the reason I am asking for help for this wonderful family.
If you are unable to help financially, prayers and well wishes are most certainly appreciated!!
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