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Save Abigael's Kidneys

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UPDATE I just spoke with the doctors and we have great news! Abigaels protein levels in her urine are the lowest that we have seen in months (900 vs 3000) but ultimately that number should be 0. Abigael will be in the hospital for a few more days as they monitor her low magnesium levels. If those stabalize, she could be home this weekend. This being said, we have not heard back from any compassion societies on an answer but they have put a rush on the paperwork so please pray for favour! As it stands, thanks to the generous love and support, we have enough for her first 'outpatient' vial!!! There are no words at the blessing that is! The pharmacy will be giving me an exact price on that vial tomorrow. In short, Abigael is in REMISSION!!!!!! YESSSSSS!!!!!!!!!!! This makes the next two doses of this medicine even more important. I am hoping and praying that the between the love and support of everyone through GoFundMe and the compassion society, that we can raise enough for her 4th and final vial and that her kidneys would be completely restored!!! Thankyou again, and please keep sharing this campaign This is Abigael Lily, and she needs your help. Abigael was born a beautiful, 7 pound, healthy baby girl in Novemeber 2015. At 2 years of age (January 2018) she contracted pneumonia. She beat it, only to begin to swell like a balloon and contract pneumonia again in February. In March she was diagnosed with Nephrotic syndrome, a rare auto-immune disease in which the filters of her kidneys were compromised. She was started on steroids among other medicines and from March to May she received 9 blood product transfusions. Finally, she underwent a kidney biopsy in June. One week later, Sunday June 24th, we brought her in, due to the absolute exhaustion she was showing. Overnight, she went into kidney failure and her renal system (tubes in kidneys) colapsed due to a lack of blood flow and therefore her ability to urinate became impossible. The biopsy results show an even more rare form of the syndrome, known as fsgs. She has been in the hospital ever since. After a long struggle, many treatments of dialysis, and a lot of patience, her vitals are stable, and her urinating has started to improve. Now we have an opportunity, a 70 percent chance of having her kidneys recover with a certain medicine, and with that, my baby girl can have the tube to her heart removed, and become a kid again!! However, she cannot have this medicine until her kidneys have stabilized. And she is still in kidney failure. The problem: To get her kidneys to the level they need to be, she needs 4 viles over the next 4 weeks of a very expensive drug. The viles are 3500 plus tax a piece, and she will need all 4 for the best chance at saving her kidneys. The hospital will cover the first two and we are in application for assistance from some compassion agencies but time is very short. To put it simply, we need just under $8000.00 ... by the 1st of August. The doctors made it clear. If we dont want her to live a life of dialysis, transplants, and hospitalization, if we want to save her kidneys, and in turn her childhood, then we must act now. She received her first vile today, and they are monitoring her very closely. Please share the crap out of this, help me give my baby her childhood back. Together, we can save her kidneys. Thankyou to everyone, wether donating, sharing on socials, or sending prayers and thoughts of love and life! We couldn't have made it this far without you, now it's time to end this.
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    Jordan Paul Amoraal
    Organizer
    London, ON

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