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Support A Family. Save A Child. Fund A Cure.
Every child deserves the chance to grow up healthy and happy. For Charlotte Monroe MacMechan, that all changed when parents Michael and Samantha noticed unusual facial and body twitching when she was just 2 months old. What they hoped would be a routine doctor checkup turned into a parent’s worst nightmare: a dire diagnosis for their baby.
Charlotte has a rare genetic mutation known as KCNT1 which causes early infantile epilepsy. At their worst, Charlotte has experienced over 50 seizures a day. With just 20 children diagnosed worldwide, treatment is in its infancy. However, hope is on the horizon.
Two of the world’s most prominent research universities are working together on cutting edge research and treatment. And lucky for Charlotte, she’s already been accepted into their study. This means that Charlotte is already on the road to unlocking a cure for herself and every child that follows who suffers from this devastating condition.
Determined and hopeful, Charlotte’s parents Samantha and Michael are committed to finding a cure for Charlotte and other children. However, they need your help. The protocol Charlotte’s undergoing will require a full 14 weeks off work for both parents as they relocate to Boston for daily treatment, evaluation and care at Boston Children’s Orphan Disease Research Center.
“We’re holding onto hope and staying strong for Charlotte,” Samantha says, adding, “When I lay my head down at night, I need to know I’ve done everything possible for our baby and the other families dealing with this rare condition. If Charlotte’s journey leads to a cure for others, it will change the lives of so many. It’s worth it.”
If just 2000 people donate $100, or 1000 people donate $250, we will successfully support a family, help to save a child and fund a cure.
Won’t you help us save baby Charlotte and other children like her?
Every child deserves the chance to grow up healthy and happy. For Charlotte Monroe MacMechan, that all changed when parents Michael and Samantha noticed unusual facial and body twitching when she was just 2 months old. What they hoped would be a routine doctor checkup turned into a parent’s worst nightmare: a dire diagnosis for their baby.
Charlotte has a rare genetic mutation known as KCNT1 which causes early infantile epilepsy. At their worst, Charlotte has experienced over 50 seizures a day. With just 20 children diagnosed worldwide, treatment is in its infancy. However, hope is on the horizon.
Two of the world’s most prominent research universities are working together on cutting edge research and treatment. And lucky for Charlotte, she’s already been accepted into their study. This means that Charlotte is already on the road to unlocking a cure for herself and every child that follows who suffers from this devastating condition.
Determined and hopeful, Charlotte’s parents Samantha and Michael are committed to finding a cure for Charlotte and other children. However, they need your help. The protocol Charlotte’s undergoing will require a full 14 weeks off work for both parents as they relocate to Boston for daily treatment, evaluation and care at Boston Children’s Orphan Disease Research Center.
“We’re holding onto hope and staying strong for Charlotte,” Samantha says, adding, “When I lay my head down at night, I need to know I’ve done everything possible for our baby and the other families dealing with this rare condition. If Charlotte’s journey leads to a cure for others, it will change the lives of so many. It’s worth it.”
If just 2000 people donate $100, or 1000 people donate $250, we will successfully support a family, help to save a child and fund a cure.
Won’t you help us save baby Charlotte and other children like her?
Organizer and beneficiary
Samantha MacMechan
Beneficiary