Rare Bone Disorder

Melorheostosis patient (rare, disabling and painful bone disorder affecting only about 300 people in the entire world) hoping to attend the 2014 conference hosted by the Melorheostosis Association. Research funding limited but able to meet with US and Belgum board member doctors attending conference at the Mayo Clinic in Rochester, MN on October 24th 2014.  Donations requested for about $5000 of remaining uninsured medical bills from 2012 conference, and air fare to attend this 2014 conference