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Lydia's specialized equipment

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Hi there our daughter Lydia is now 6 years  old she has a rare brain disorder called Alobar Holoprosencephaly this condition is life limiting , she also has hydrocephalus ,she cannot walk or talk and has low she is getting older we are finding she needs more and more equipment.....most recent we are looking to get her a sleeping system which costs £1000 she will benefit so much from this as she will be positioned better of a night time...Lydia is a truly amazing little girl she has had over 40 operations and yet she still smiles she is nothing like how the doctors described she would be she is very much a very happy little girl who absolutely loves life,  even though she can't speak she is very much vocal......we would love to be able to make a sensory area in our house for Lydia this will help to stimulate her and relax her  it is also very good therapy for her .. Please can you help her she truly is a remarkable young lady who we are very proud ofxx x


  • David platt
    • £10 
    • 7 yrs


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