Waylon Haynes

Waylon was born with an undiagnosed genetic muscle disorder that will shorten his life span. Until we have a more specific diagnosis we won't know by how much. The biggest risk to Waylons well being is how his muscle weakness effects his lungs. Most children who are born with a form of congenital muscular dystrophy don't live past adolescence due to respiratory failure.  
On November 24th, 2017 Waylon went to the DR because Megg & Jordan felt like something wasn't right. They drew this blood & that following Monday Waylon's DR called asking for the Haynes to come into the office. This is when they found out Waylons muscles were breaking down at a alarming rate & they were sent to Childern's Hospital in Little Rock, AR. While there they ran some tests on Waylon & they were sent home after a week. Waylon started getting worse, he wasnt able to keep his head up by himself & he was only eating 10 oz a day. On January 24th, 2018 Megg & Jordan decided to go back to Childern's for Waylon to have surgery to get a feeding tube. During this stay they started physical therapy & started treating his breathing problems. On January 24th, 2018 Waylon had surgery for his feeding tube. He's doing good with the feeding tube, hes gained 3 1/2 LBS in a month!! Unfortunately on February 22nd, 2018 Megg took Waylon to the ER because his heart rate was too high, during the visit they informed her that Waylon has pneumonia. This made them go back to Childern's for their 3rd trip! Waylon was moved to the PICU on the 24th because he was breathing too hard. They got to leave the PICU on the 27th but they still remain in Childern's.

Donations

  • Anonymous 
    • $30 
    • 21 mos
  • Erica Murphy 
    • $30 
    • 22 mos
  • Anonymous 
    • $20 
    • 22 mos
  • Nathan Friz 
    • $20 
    • 22 mos
  • Anonymous 
    • $5 
    • 23 mos
See all

Organizer

Megg Haynes 
Organizer
Rogers, AR
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