The condition she has is Plastic Bronchitis. Her new heart circulation (the Fontan) is putting an extra load on her liver. Doctors believe that London's lymph vessels may have attached to her lungs and are leaking fluid into her lungs. The fluid builds up in London's lungs creating a cast of her bronchial tube. London coughs these casts up daily and with each cast there is a risk of it blocking her airway. Since this diagnosis in April, London has had 2 week long hospitalizations in the cardiac ICU, 2 bronchoscopies, and a heart catherization. Even with 3 1-hour long breathing treatments a day including a cystic fibrosis vest, London produces casts and struggles to breath every day.
London has maximized her treatments here in Arizona, and nothing is helping. The Children's Hospital of Philadelphia has a newer (London will be the 3rd Fontan kid getting this procedure ever) breakthrough lymph procedure in which the doctors will map out her lymphatic system and glue off London's lymph vessels. This is the only hospital in the nation doing this procedure right now. In June, London's family will be traveling to Philadelphia in hopes that this procedure will cure her of these awful casts. Any donations to help her family with travel & medical expenses would be much appreciated!!
- Brittani Johnson
- Lori Hibbard
- Rita Tranisi
- Cheryl Stallcup
- Shelley Rockwood
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