You all know Charlie and his life story. He was a 23.4 weeker, weighing less than 2 pounds. He was born addicted to drugs and alcohol. He’s had 56 surgeries. I adopted him when he was 2 years old. He wasn’t expected to last 5 years. Now he won’t make 30. Charlie is in STAGE IV Kidney/Renal failure. He is not a candidate for a transplant. The palliative care team at Connecticut Children’s Medical Center asked Charlie what he wanted to do with the rest of his life and he wants to travel. He wants to go to Universal Studios in Florida, Hawaii, Dubai ☺️ and Japan. I do not expect to do most of these but I would like to do some of them. Any money left over will be donated to another SBS family in a similar situation.