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New Lungs

Doação protegida
For many of you on Facebook this is new information.  For some, you knew or recall hearing about this way back when - maybe high school or before.  And for a very select few you have known all the ins and outs  and none of this is at all new information.

I'd like to share with you that I have a genetic lung disease called cystic fibrosis (CF).  It's classified as rare because only approximately 30,000 Americans have this disease.  I am really one who has beat the odds by being as healthy as I've been for most of my life.  However, in recent months, simply by the progressive nature of CF, I have lost quite a bit of lung function and my doctors at Kaiser recommended last April I prepare for a lung transplant.  Wow!  I spent the summer going through all the tests necessary for that surgery.  Once the testing was complete I was sent to UCSF, who are best in the business at transplanting lungs, to meet with the team there.  I was told I'm a textbook case and an ideal candidate for this surgery.  Today I was "listed" for transplant which means I could get a call from UCSF anytime.  The surgery could happen tomorrow, 2 weeks or 6 months from now.  There's no way to know when I'll get the call.  

At the behest of UCSF I am starting a gofundme page.  Part of the transplant process is to essentially live in San Francisco for two months.  I will spend a week in ICU and an additional week in a regular hospital room.  From there I will spend a minimum of 6 weeks off-site under the watchful eye of family and friends.  The monies from gofundme will help with all the additional costs of my stay in San Francisco - housing, transportation, parking, prescriptions, groceries, and other unknown costs that are sure to come up.  I'm a proud person and it has taken me two weeks to completely come around on the idea that a gofundme is okay to do.  Many friends and family have told me my cause is a worthy one - maybe so, that's for each of you to decide.  As a way to ease the financial burden on our family, which many other resources have already been used on my health, I'm swallowing my pride and using gofundme.   

My family and I are in deep gratitude for all of your support.  

UCSF recommends patients fundraise between $9,000-$10,000.  I am hoping to raise $7500.

Because you'll be wondering and have questions here are some resources to check out:

www.cff.org

https://www.ucsfhealth.org/clinics/lung_transplant/

Doações 

    Organizador

    Jason Dadami
    Organizador
    Concord, CA

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