New Lungs
For many of you on Facebook this is new information. For some, you knew or recall hearing about this way back when - maybe high school or before. And for a very select few you have known all the ins and outs and none of this is at all new information.
I'd like to share with you that I have a genetic lung disease called cystic fibrosis (CF). It's classified as rare because only approximately 30,000 Americans have this disease. I am really one who has beat the odds by being as healthy as I've been for most of my life. However, in recent months, simply by the progressive nature of CF, I have lost quite a bit of lung function and my doctors at Kaiser recommended last April I prepare for a lung transplant. Wow! I spent the summer going through all the tests necessary for that surgery. Once the testing was complete I was sent to UCSF, who are best in the business at transplanting lungs, to meet with the team there. I was told I'm a textbook case and an ideal candidate for this surgery. Today I was "listed" for transplant which means I could get a call from UCSF anytime. The surgery could happen tomorrow, 2 weeks or 6 months from now. There's no way to know when I'll get the call.
At the behest of UCSF I am starting a gofundme page. Part of the transplant process is to essentially live in San Francisco for two months. I will spend a week in ICU and an additional week in a regular hospital room. From there I will spend a minimum of 6 weeks off-site under the watchful eye of family and friends. The monies from gofundme will help with all the additional costs of my stay in San Francisco - housing, transportation, parking, prescriptions, groceries, and other unknown costs that are sure to come up. I'm a proud person and it has taken me two weeks to completely come around on the idea that a gofundme is okay to do. Many friends and family have told me my cause is a worthy one - maybe so, that's for each of you to decide. As a way to ease the financial burden on our family, which many other resources have already been used on my health, I'm swallowing my pride and using gofundme.
My family and I are in deep gratitude for all of your support.
UCSF recommends patients fundraise between $9,000-$10,000. I am hoping to raise $7500.
Because you'll be wondering and have questions here are some resources to check out:
www.cff.org
https://www.ucsfhealth.org/clinics/lung_transplant/
I'd like to share with you that I have a genetic lung disease called cystic fibrosis (CF). It's classified as rare because only approximately 30,000 Americans have this disease. I am really one who has beat the odds by being as healthy as I've been for most of my life. However, in recent months, simply by the progressive nature of CF, I have lost quite a bit of lung function and my doctors at Kaiser recommended last April I prepare for a lung transplant. Wow! I spent the summer going through all the tests necessary for that surgery. Once the testing was complete I was sent to UCSF, who are best in the business at transplanting lungs, to meet with the team there. I was told I'm a textbook case and an ideal candidate for this surgery. Today I was "listed" for transplant which means I could get a call from UCSF anytime. The surgery could happen tomorrow, 2 weeks or 6 months from now. There's no way to know when I'll get the call.
At the behest of UCSF I am starting a gofundme page. Part of the transplant process is to essentially live in San Francisco for two months. I will spend a week in ICU and an additional week in a regular hospital room. From there I will spend a minimum of 6 weeks off-site under the watchful eye of family and friends. The monies from gofundme will help with all the additional costs of my stay in San Francisco - housing, transportation, parking, prescriptions, groceries, and other unknown costs that are sure to come up. I'm a proud person and it has taken me two weeks to completely come around on the idea that a gofundme is okay to do. Many friends and family have told me my cause is a worthy one - maybe so, that's for each of you to decide. As a way to ease the financial burden on our family, which many other resources have already been used on my health, I'm swallowing my pride and using gofundme.
My family and I are in deep gratitude for all of your support.
UCSF recommends patients fundraise between $9,000-$10,000. I am hoping to raise $7500.
Because you'll be wondering and have questions here are some resources to check out:
www.cff.org
https://www.ucsfhealth.org/clinics/lung_transplant/
Organizer
Jason Dadami
Organizer
Concord, CA