
Wolfram Syndrome UK
Hi everyone!
I am competing in my first ever HYROX with my friend Charlotte on Monday 5th May & would really like to raise as much money for my little cousin. Penfold Verrall Ltd have very kindly donated my mandatory fundraising pledge to Macmillan Cancer Support, so I can hopefully match or raise as much for Wolfram Syndrome UK. As some of you might know, my cousin Jennifer was diagnosed with Wolfram Syndrome in 2010. This rare genetic disorder causes many conditions such as Diabetes, Deafness , Optic Atrophy & Neurological problems. I have seen first hand what a disease like this can do to someone & their family, so any contribution would be greatly appreciated.
Thankyou - Katie
Organizer
Katie Lynch
Organizer
England
Wolfram Syndrome UK
Beneficiary