Bucket List

On May 2, 2014, doctor’s informed us our ray of sunshine, little d, only has 6 months to 3 years left to shine. Infantile metachromatic leukodystrophy (MLD) would slowly dull the brightness of our light through a rapid and progressive timeline.

Within as little 3 months little d could lose the mobility of his limbs, 12 months eyesight and speech, hearing loss and dementia will soon follow. The sadness that little d will be deprived of life’s many sweet offerings is heartrending.

To ensure he knows the peaceful surrender of welcoming a new day, the quiet sounds and sight of rainfall and the vast excitement of Disney we have complied a bucket list. Compiling a bucket list for a two-year quickly dissipates the dense haze of denial one blindly stumbles through when faced with such unbearable grief. It awakens the heart and mind to absorb the preciousness of each moment… each day.

If you would like to help provide a memorable experience please donate a few dollars to help fund little d’s bucket list. We understand times are challenging for everyone so if you are not able to gift Daniel please let him gift you. We welcome everyone to follow his facebook page “Little D’s Bucket List”. His page will document each item he experiences on his bucket list. We hope little d’s joy reminds you to cherish the little things, each day and each other.

Thank you

Facebook Page: Little D's Bucket List
https://www.facebook.com/groups/663300137050432/?fref=nf


The Bucket List:

Places to Visit
Ocean City, MD
Ocean City, NJ
Longwood Gardens
Aquarium
Please Touch Museum in Philadelphia
Baltimore Science Center 
Disneyworld
Rocky Gap, MD
Day Out with Thomas, Strasbourg Railway
Dutch Wonderland
Hershey Park

Experiences
Feed ducks
Puppy Playtime
Fly a kite
Walk in the rain
Splash in a puddle
Mud Pie
Play with food coloring in water
Play with a lite bright
Make snow cones
Random act of kindness
Watch Annie the musical
Finger paint
Room full of balloons
Catch lighting bugs
Ride the Metro 
Ride the Western Maryland Railroad
Monthly Birthdays
Play in sprinkler
Slip n slide
Heliocopter ride
Small airplane ride
Hot air balloon
Water-gun fight
Costume party
Roller coaster
See a sunrise
See a sunset
Horseback ride
Construction site tour
Sailing
Throw glitter in the air
Watching planes and helicopters fly in and out
Play on a firetruck
Go-karts
Hide n seek
Play on real train
Campfire
Fishing
Wave flags at Rolling Thunder
ATV ride
Family Fun
Putt putt
Keys' baseball game/firework night
Ice hockey game
Pizza and Pretzel creations
Medieval Times with whole family
Dave and Buster's or other large arcade
Movie night in the front yard
NASCAR race
Go to the range with dad
  • Ed Robinson 
    • $100 
    • 57 mos
  • Al Lasso 
    • $25 
    • 58 mos
  • Tracee Ducker  
    • $100 
    • 58 mos
  • Anonymous 
    • $50 
    • 59 mos
  • Anonymous 
    • $50 
    • 62 mos
See all

Organizer

Kendra Sullivan 
Organizer
Frederick, MD
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